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Rare Cancers & Tumors

Welcome to the Rare Cancer Alliance (RCA) website. If you are newly diagnosed with a rare type of cancer or a pediatric cancer; you are no longer alone. RCA's primary purpose is to disseminate information and provide support to all pediatric (childhood) and adult rare cancer patients. In the Forums you will find people just like you - patients and survivors.  You can read some of their stories in the Personal Story support section. Our members are people who have had to go through the process of wading through information (or lack of it) for their own cancer. The information and support found on our website may save you precious time and energy.

RCA's secondary purpose is to offer a consolidated venue to raise awareness and funding for rare cancer research, which seldom benefits from donations made to general cancer research organizations. Many rare cancers have unique traits with specialized treatment needs. Please visit our page on Research Funds. RCA welcomes new information on other research funds.

Please participate in RCA's endeavor to make this this a useful site for all patients and caregivers!

Cancer Dictionary Search

Rare Cancer Dictionary

Navigation Instructions

Use the 'expandable menu' (upper left) to reach links for various types of cancer info. As it expands, click on the link you want. Click on the top of page logo to return to the start page of this section. The 'bar menu' will navigate through these areas of the website:

Home - general cancer information, w/links to assistance and research resources.

Support - info, research, volunteer.

Story - personal patient and survivor stories.

Forum - private & secure bulletin board that will allow you to connect with others.

Info - Rare cancer information and disease write-ups.

News - up to date cancer news for rare cancers.

Words - Cancer Dictionary - cancer terminology and acronyms.

Cancer Events - fundraising, support, and other events, in a calendar format.

SiteMap - complete list of all of our entry web pages.

Twitter - Tweet Me.

Facebook Group - discussion Facebook group.


Rare Cancer, Mixed Cell, Benign, Borderline & Malignant Tumors Groups - Forum Information - Publicly Viewable -
Acinic Cell Carcinoma    --> Forum Welcome, Read Me First
Adenocarcinoma & Carcinoma    --> Forum Posting How To's/Question/Suggestions
Adenoid Cystic Carcinoma    --> Forum Rare Cancer Alliance Newsletters
Adenoid Cystic Carcinoma Breast    --> Forum
Adrenocortical Carcinoma & Adrenal Cancer    --> Forum General Forums - Publicly Viewable -
Anal (Anus) & Rare Rectal Cancer    --> Forum In Memorium
Appendiceal Carcinoma (Appendix Cancer)    --> Forum Laws & Political Issues - Any Country
Bile Duct, Pancreas, Gall Bladder & Cholangiocarcinoma    --> Forum Local Support Groups, Organizations, Events, Fundraising, & Conferences
Brain, Spinal Cord, & CNS Tumors - Rare    --> Forum Prayer Requests
Breast Tumors & Cancers - Rare    --> Forum Seeking Others - Helping Others
Carcinoid and Syndrome    --> Forum Submit Your Personal Story Here
Eye (Ocular) Cancer    --> Forum
Head, Neck, & Oral Cancers - Rare    --> Forum
Hemangioendothelioma    --> Forum
Kidney, Bladder, & Urinary Tract    --> Forum
Lung Cancers - Rare Adult & Childhood    --> Forum
Neuroendocrine Tumors    --> Forum
Peritoneal Cancer    --> Forum
Phyllodes Tumor    --> Forum
Pseudomyxoma Peritonei & Mucinous Tumors    --> Forum
Rare Skin and Sweat & Sebaceous Gland Cancers    --> Forum
Reproductive - female    --> Forum
Sarcoma & Rare Bone Tumors    --> Forum
Small Intestine Cancer (Small Bowel)    --> Forum
Teratomas & Germ Cell Tumors    --> Forum
Testicular    --> Forum
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