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Rare Cancer Information

Please review the Rare Cancer Alliance Disclaimer Statement before utilizing this area of the website. I am working on this section of the website and this will be a slow process. You can search for your type by using the Disease Info menu selection above or the search box at the upper right of each page. Or visit our Support Forums (listed below) for answers. If you can not find your cancer, please use the contact form to let me know. I will put requested cancer types at the top of my priority list.

In the Disease Info section, I will try to include the following information for each disease:

Name - the names and synonyms used to refer to this cancer.

Define - basic information and specific characteristics.

Risks - risk factors that could predispose a person, including familial links.

Detect - known symptoms and diagnostic that may precede discovery.

Treatments - which ones are normally used to treat, including non-standard.

Stage/Grade - stage or grade considerations included in treatment decisions.

Follow-up - interval and diagnostics tests used.

Mets/Recur - symptoms they may suggest metastasis or recurrence, and treatment options.

Link - if there is further information or support groups for this cancer on our site, you will find it here.


Cancer Dictionary Search

Rare Cancer Dictionary

Navigation Instructions

Use the 'expandable menu' (upper left) to reach links for various types of cancer info. As it expands, click on the link you want. Click on the top of page logo to return to the start page of this section. The 'bar menu' will navigate through these areas of the website:

Home - general cancer information, w/links to assistance and research resources.

Support - info, research, volunteer.

Story - personal patient and survivor stories.

Forum - private & secure bulletin board that will allow you to connect with others.

Info - Rare cancer information and disease write-ups.

News - up to date cancer news for rare cancers.

Words - Cancer Dictionary - cancer terminology and acronyms.

Cancer Events - fundraising, support, and other events, in a calendar format.

SiteMap - complete list of all of our entry web pages.

Twitter - Tweet Me.

Facebook Group - discussion Facebook group.


Rare Cancer, Mixed Cell, Benign, Borderline & Malignant Tumors Groups - Forum Information - Publicly Viewable -
Acinic Cell Carcinoma    --> Forum Welcome, Read Me First
Adenocarcinoma & Carcinoma    --> Forum Posting How To's/Question/Suggestions
Adenoid Cystic Carcinoma    --> Forum Rare Cancer Alliance Newsletters
Adenoid Cystic Carcinoma Breast    --> Forum
Adrenocortical Carcinoma & Adrenal Cancer    --> Forum General Forums - Publicly Viewable -
Anal (Anus) & Rare Rectal Cancer    --> Forum In Memorium
Appendiceal Carcinoma (Appendix Cancer)    --> Forum Laws & Political Issues - Any Country
Bile Duct, Pancreas, Gall Bladder & Cholangiocarcinoma    --> Forum Local Support Groups, Organizations, Events, Fundraising, & Conferences
Brain, Spinal Cord, & CNS Tumors - Rare    --> Forum Prayer Requests
Breast Tumors & Cancers - Rare    --> Forum Seeking Others - Helping Others
Carcinoid and Syndrome    --> Forum Submit Your Personal Story Here
Eye (Ocular) Cancer    --> Forum
Head, Neck, & Oral Cancers - Rare    --> Forum
Hemangioendothelioma    --> Forum
Kidney, Bladder, & Urinary Tract    --> Forum
Lung Cancers - Rare Adult & Childhood    --> Forum
Neuroendocrine Tumors    --> Forum
Peritoneal Cancer    --> Forum
Phyllodes Tumor    --> Forum
Pseudomyxoma Peritonei & Mucinous Tumors    --> Forum
Rare Skin and Sweat & Sebaceous Gland Cancers    --> Forum
Reproductive - female    --> Forum
Sarcoma & Rare Bone Tumors    --> Forum
Small Intestine Cancer (Small Bowel)    --> Forum
Teratomas & Germ Cell Tumors    --> Forum
Testicular    --> Forum
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