Brain, Spinal Cord, & CNS Tumors - Rare Adult & Pediatric

brain stem glioma, ependymoblastoma, hemangiopericytoma, germinoma, gliomatosis cerebri, lymphoma, meningioma, meningeal melanocytoma, meningeal sarcoma, oligodendroglioma, pineoblastoma This is an open group, members can apply to join.

Group members      
Craig Gilligan 1 Pineal Germ Cell Teratoma   Tue Feb 10, 2009 1:43 pm
deggie 1 hemangiopericytoma   Wed Jan 18, 2012 2:27 am
SuzyQ 2 hemangiopericytoma
Toronto, Ont. Can.
Tue Jan 31, 2012 11:44 am
Cindyb 0 Medulloblastoma   Tue Jul 31, 2012 10:04 am
Shspiegel 0 Multiple meningioma   Thu Feb 28, 2013 3:19 pm
dward555 3 Desmoplastic Infantile Ganglioglioma   Sat Nov 02, 2013 8:12 am
Graham 1 haemangiopericytoma   Thu Sep 04, 2014 4:26 am
Drecazz 1 Giant Cell Carcinoma of the Spine   Sat Nov 07, 2015 10:07 am
Bugaroo 0 Hemangiopericytoma   Sat Jan 14, 2017 11:10 pm
Brianna 0 Chroid plexus carcinoma   Sun Dec 17, 2017 8:14 pm
Sammyq 0 Clinal chordoma   Sun Aug 04, 2019 7:46 am
nancyquam 1 Primary intraocular lymphoma   Fri Nov 16, 2007 6:36 am
chenucat 1 gliomatosis cerebri   Mon Sep 21, 2009 1:37 am
Bono 1 PARAGANGLIOMA   Sun Mar 20, 2011 4:37 pm
MissAlynn 1 Desmoplastic Infantile Ganglioglioma   Sun Apr 22, 2012 6:24 pm
ali&sam 0 Metastatic Choroid Plexus Carcinoma   Wed Oct 31, 2012 4:40 pm
GracieJane 0 Primary Central Nervous System Lymphoma   Wed May 01, 2013 3:40 am
VickyPrecious1234 0 Hemangiopericytoma   Wed Apr 23, 2014 2:25 am
TilleryIsLoved 0 Desmoplastic Infantile Ganglioglioma   Thu Oct 09, 2014 6:24 pm
0208paula 0 Hemangiopericytoma   Mon Feb 29, 2016 4:56 pm
Iceberg 1 desmoplastic infantile ganglioglioma
Australia
Sat Apr 15, 2017 1:03 am
jingyilin 0 Germ cell tumor in Pineal & Pituitary Gland   Tue Mar 13, 2018 7:28 pm
TEAMDP 0 nongerminomatous germ cell tumor   Wed Nov 18, 2020 11:26 am
ChristinaMChiavetta 2 Gliomatosis Cerebri   Tue Jan 06, 2009 2:12 pm
Treeby 1 Carotid Body Paraganglioma   Thu Sep 09, 2010 10:04 pm
cretana 0 Hemangiopericytoma   Mon Nov 21, 2011 2:27 pm
bt1943 1 hemangio pericytoma   Sun Jul 01, 2012 10:54 am
jamer1971 0 juvenille pilocytic astrocytoma in the spinal cord   Fri Dec 07, 2012 8:02 pm
lnichol 0 glioneulonal-tumor with neuropil-like islands   Sun May 03, 2015 4:38 am
SCT63 3 stage 1 mucin secreting neoplasm   Mon Jun 09, 2014 3:52 pm
bongo1975 2 Phylloid tumor   Tue Dec 30, 2014 7:46 am
mecken 0 Hemangiopericytoma of the Brain   Sun Oct 16, 2016 10:50 pm
KimL 0 Haemangiopericytoma Brain   Sun Dec 03, 2017 5:51 pm
AMC76 0 hemangiopericytoma   Wed Feb 27, 2019 8:02 am
Pat 4 hemangiopericytoma   Thu Aug 02, 2007 8:58 pm
ajosef 1 PNET Medulloblastoma
Philadelphia
Fri Sep 04, 2009 6:43 am
nathans.family 2 desmoplastic infantile ganglioglioma   Mon Aug 09, 2010 7:40 am
Sarah wife of Tom 1 papillary renal cell carcinoma! Brain tumor   Sun Oct 09, 2011 10:34 am
ampsmom 0 Pilocytic Astrocytoma with Pilomyoid features   Sun Dec 18, 2011 7:04 pm
Pretzels 0 astroblastoma/L2-spinal cord   Tue Jul 31, 2012 11:25 pm
craniums_up 0 Germ Cell Tumor/Yolk Sac/Teratoma   Sat Apr 13, 2013 7:33 pm
Morty 0 hemangiopericytoma   Sat Dec 07, 2013 9:34 am
hemangiopericytoma 1 hemangiopericytoma   Fri Sep 05, 2014 5:58 pm
MauGav 0 meningeal hemangiopericytoma   Sun Jan 03, 2016 4:10 am
skoorb 0 Hemangiopericytoma   Wed Mar 22, 2017 7:37 am
Paula j 0 Hemipercytoma grade 2   Tue Jan 09, 2018 4:36 pm
vilinikolovabt 0 astrocytoma   Mon Aug 05, 2019 10:28 am
BlueTruly 2 gliomatosis cerebri/Oligodendroglioma
NOVA
Thu Apr 13, 2006 5:36 pm
pfuller70517 1 gliomatosis cerebri   Tue Nov 17, 2009 11:38 am

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