Rare & Pediatric Cancer Support
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Rare Cancer Research

If you are reading this website and wondering how you can help, you can either donate your, services, time, or your funds.  Please read through the Donate Services link, if you prefer donating services or time. Any service, effort, or time donation is greatly appreciated.

Rare cancer research does not specifically benefit from the general cancer funds that you may currently be donating to. Our cancers require specialized research based on their rare cell types or body sites. In order to do this type of research we, the cancer patients, often need to do our own fundraising and initiate our own research projects. Or interest a medical facilility or researcher into initiating research. This is not easy when you are already battling cancer! We need your help. Donations of money may be made directly to the following research funds:

Adenoid Cystic Carcinoma:
Adenoid Cystic Carcinoma Research Fund - 10 Years Later  

Adrenal - Adrenocortical Cancer:
Adrenocortical Cancer Research Fund @ ACCURE - Advancing treatments for Adrenocortical Carcinoma
University of Michigan - Adrenal Cancer Research Fund

Gallbladder and Bile Duct Cancer Research:
Gallbladder and Bile Duct Cancers - at Johns Hopkins

Neuroendocrine Research Fund:
Neuroendocrine Tumor Research Foundation (NETRF)

Rhabdomysarcoma Eye Cancer Research
Read Suryan's Story Here
Then Contact Dr Frederick Barr MD,PHD

Retinoblastoma Research:
Dr. Carlos G. Bianciotto Fund

If you would like to have your fund listed on this page, it will need to meet the following guidelines:

  The monies must be primarily used to fund a scientific/medical research project for a particular rare cancer or group of rare cancers.

  Donations must be submitted through a 501(c)(3) organization or a recognizable medical research facility.

  Funds must be used for research projects only, not to support other cancer research or organization.

  Submissions must be reviewed and accepted by this organization for inclusion.


We welcome information about volunteer efforts for fundraising projects.  If you are in charge of this type of effort, or have considered initiating one, please let us know.