Rare Cancer Stories
Share |
Home   Support   Story   Forum Support   Info   News & Clinical Trials   Cancer Dictionary   Events Calendar   SiteMap   Twitter   Facebook

Solid Pseudopapillary Neoplasm on the Pancreas

Bryan - May 10, 2009

Join others on our Rare Cancer Support Forums

It all started with a yearly physical. My blood work came back with elevated liver enzymes. My doctor then sent me for a CT scan, they found a solid mass in the tail of my pancreas. After futher scans, they sent me to a surgeon.

The surgeon told me that he was almost 100 percent positive that this was not cancer, but it needed to be removed. I had a Distal Laproscopic Pancrectomy/Splenectomy they took my spleen, and half of my pancreas.

The pathology report came back positive for a Solid Pseudopapillary Neoplasm, which is a low grade maligmant tumor. The pathology report also said that there was a posotive margin on the bottom of my pancreas, meaning my surgeon who gave me false hope from the beginning did not get all of it with surgery.

They dont know how to treat this, I have one Oncology Dr. that just wants to watch it, a CT scan 6 months, he then sent me to a Radiology Oncologist, and he wants to go ahead with Radiation Therapy.