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Cystic Mesothelioma

PostPosted: Mon Jan 17, 2011 4:56 pm
by sanitoid
Hi. I'm 32 and have cystic mesothelioma, a peritoneal surface cancer. I was diagnosed 11/5/2007. I'm told there are about 100 people in the world with this. Taking a chance and looking for anyone else who shares my diagnosis. Thanks for reading and look forward to e-meeting you!


Re: Cystic Mesothelioma

PostPosted: Thu Jan 28, 2016 3:25 am
by Gillby1
Hi Holly,

Hope you still check your posts! I have the same as you, and have just posted my story in the forum if you're interested.I'd love to hear from you!

Gill x

Re: Cystic Mesothelioma

PostPosted: Mon May 30, 2016 8:40 am
by Nikyoung
Hi there,

I have just been diagnosed with the same this month (after my op, they thought I had pseudomyxoma peritonei). I am a 43 year old woman and live in the UK.

I would really like to speak to someone else who has the same condition as I am getting very confused as to what it is and any future problems (as you know it is very rare so difficult to find info on it) My surgeon left some cysts in around my liver during the op, no-one seems to think this is a problem, but the more I read about it the more worried I get about it.