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Neuroendocrine Anal Cancer Stage IIIb

PostPosted: Wed Mar 10, 2010 1:14 pm
by mshalto
Hi,

I'm looking to connect with others who have Stage IIIb (or any stage, really) neuroendocrine carcinoma of the anus. I'm told this is a very rare sub-type of anal cancer. My doctors decided against the Nigro protocol and I'm just now finishing a combined regimen of rads and Cisplatin/Etoposide.

A colostomy might be in my near future. First follow-up PET scan and MRI is early April. I would love to hear from anybody else going through this.


Thanks,
Miriam

Re: Neuroendocrine Anal Cancer Stage IIIb

PostPosted: Fri Mar 12, 2010 11:03 am
by sharon
Marian, You may wnat to post in the anal cancer forums also.

Re: Neuroendocrine Anal Cancer Stage IIIb

PostPosted: Mon Jun 07, 2010 5:10 pm
by gabby_Ca
Hi Miriam:

I am following up to see if anyone had contacted you as of yet?

As well, how did your additional testing go? If you like, you can pm me or else respond here.

Welcome to this great site and our wonderful group in the anal cancer group.

Cheers,

Gabby