I live in Oregon, but our son is a teaching doctor (kind of like "House") in SLC. When I was diagnosed, he found nobody experienced with ACC; he and his friends did a great deal of research for me, however, and I ended up being treated at the U of Washington. The doctors in Oregon also couldn't help me, but sent me to UW, whose doctors did, and I'm fine now. My ACC was in my trachea. Please email me if I can provide any more specific information you might want.