Adenoid Cystic Carcinoma of the lacrimal glad

Looking for others with your cancer? Want to help others? Enter info here.

Adenoid Cystic Carcinoma of the lacrimal glad

Postby pb5 » Sat Jul 25, 2009 10:21 pm

I have it and would like to know if there is anybody else out there who may also have it...
pb5
 

Re: Adenoid Cystic Carcinoma of the lacrimal glad

Postby DedeOliver » Thu Feb 04, 2010 9:12 am

Yes, me - i had it twelve years ago in the left lacrimal gland. How are you doing? Please reply.
DedeOliver
 
Posts: 3
Joined: Thu Feb 04, 2010 8:09 am
Cancer Diagnosis: Adenoid Cystic Carcinoma
Relationship To Patient: Self

Re: Adenoid Cystic Carcinoma of the lacrimal glad

Postby janeshiva » Sun Nov 21, 2010 9:20 am

Hi

My mum has just been diagnosed with it. Really need help and advice - we're in the North west of England (Blackburn) trying to get referred to Christie's Manchester - can anybody advise on this?

Also, how to get onto the private adenoid cystic carcinoma forum?

many thanks

Jane
janeshiva
 
Posts: 1
Joined: Thu Nov 18, 2010 5:57 pm
Cancer Diagnosis: adenoid cystic carcinoma
Relationship To Patient: Daughter

Re: Adenoid Cystic Carcinoma of the lacrimal glad

Postby lisaniris » Sun Jun 05, 2011 11:43 am

Hi Jane
My mum was diagnosed with ACC on 23rd Dec 2010, we live in Wigan. we go to Christies my mum is on a trial drug because they couldnt operate or offer her any other treatment, im guessing by now, your mum has been tranfered too Christies, how are things going, would like to compare notes if thats ok.

Lisa..x
lisaniris
 
Posts: 3
Joined: Sun Jun 05, 2011 9:27 am
Cancer Diagnosis: adenoid cystic carcinoma
Relationship To Patient: Daughter


Return to Seeking Others - Helping Others

Who is online

Users browsing this forum: No registered users and 1 guest