minor salivary gland cancer?

[vickis daughter]

Hi. I am new here and having a very hard time finding someone with the same cancer as my mom. She had a lump inside her mouth by her lip. The biopsy came back positive. It said that she had a mucoepidermoid carcinoma of intermediate grade. We have an appt at Sloan Kettering next week. I am trying to educate myself but it hasn't been easy. I am really scared and want to prepare myself so I can be strong for her. If anyone has any information, please let me know. I would truly appreciate any help. Thank you. Denise

[sharon]

Vicki, If you have not read anything, this might be a good place to start:
http://www.oralcancerfoundation.org/fac ... /index.htm

Eventhough MC is different than AdCC head and neck, you may want to join that group because AdCC is commonly a parotid or salivary gland cancer. People on that group will be having many of the same treatments.

[vickis daughter]

Thanks sharon. I will definately look at the information. Denise

[sandie]

Hi Denise

How is your mum doing? Last year on 26.5.07 I had surgery (a partial parotidectomy) in England and post op was diagnosed with Adenoid Cystic Carcinoma of my right parotid gland. I also had a 6 week course of radiotherapy. In April this year I lost the use of my right facial nerve as there was still some residual disease constricting the blood flow to my facial nerve. On 25.6.08 I had more surgery to remove my facial nerve and tissue in my neck and a tumour the size of 20x15mm which the pathology showed to be the same cancer as your Mum has, intermediate Mucoepidermoid Carcinoma. The pathologists are now checking both histology slides from this and last years to see which type of cancer I do have. I will keep you posted as it is difficult to find others with this type of cancer. Have you found anyone else with MC in your investigations?