I have this rare type of cancer and I am trying to find any others that have this to get information about it. To date I have found only 2 others with this and both are in India. Am I the only person in North America with this?
My Doctors are unaware of any in the US.
I am asking for information on how to deal with this cancer. For now the only treatment is to do nothing because of where it is on my body.
I thank you for any help offered.
John