Brain, Spinal Cord, & CNS Tumors - Rare Adult & Pediatric

brain stem glioma, ependymoblastoma, hemangiopericytoma, germinoma, gliomatosis cerebri, lymphoma, meningioma, meningeal melanocytoma, meningeal sarcoma, oligodendroglioma, pineoblastoma This is an open group, members can apply to join.

RankGroup members Posts Cancer Diagnosis Website, Location Joined
ajosef 1 PNET Medulloblastoma
Philadelphia
Fri Sep 04, 2009 6:43 am
bongo1975 2 Phylloid tumor   Tue Dec 30, 2014 7:46 am
ampsmom 0 Pilocytic Astrocytoma with Pilomyoid features   Sun Dec 18, 2011 7:04 pm
Craig Gilligan 1 Pineal Germ Cell Teratoma   Tue Feb 10, 2009 1:43 pm
GracieJane 0 Primary Central Nervous System Lymphoma   Wed May 01, 2013 3:40 am
nancyquam 1 Primary intraocular lymphoma   Fri Nov 16, 2007 6:36 am
Kelconlain 2 Supratentorial Primitive Neuroectodermal Tumor of the Central Nervous System   Fri Dec 12, 2014 10:43 pm
Alex19 0 anaplastic hemangiopericytoma, WHO grade III   Wed Jun 25, 2014 4:07 pm
Pretzels 0 astroblastoma/L2-spinal cord   Tue Jul 31, 2012 11:25 pm
Dedicated Supporternora.cannon 334 basiloid squamous cell Stage 2
Portland TN
Thu Apr 19, 2012 6:56 pm
nathans.family 2 desmoplastic infantile ganglioglioma   Mon Aug 09, 2010 7:40 am
Iceberg 1 desmoplastic infantile ganglioglioma
Australia
Sat Apr 15, 2017 1:03 am
J'dens mom 0 desmoplastic infantile ganglioma   Sat Nov 26, 2011 11:41 pm
heroaustin 0 ganglioglioma brain tumor Braf v600e mutation   Sat May 19, 2018 9:30 pm
bpp30m 0 gliomatosis cerebri   Sun May 06, 2012 9:46 pm
chenucat 1 gliomatosis cerebri   Mon Sep 21, 2009 1:37 am
pfuller70517 1 gliomatosis cerebri   Tue Nov 17, 2009 11:38 am
T'smom 0 gliomatosis cerebri   Mon Apr 27, 2015 4:20 pm
roseandtony 0 gliomatosis cerebri   Thu May 29, 2014 4:47 pm
nealemarie 0 gliomatosis cerebri   Sun Dec 04, 2011 11:53 pm
BlueTruly 2 gliomatosis cerebri/Oligodendroglioma
NOVA
Thu Apr 13, 2006 5:36 pm
lnichol 0 glioneulonal-tumor with neuropil-like islands   Sun May 03, 2015 4:38 am
Graham 1 haemangiopericytoma   Thu Sep 04, 2014 4:26 am
bt1943 1 hemangio pericytoma   Sun Jul 01, 2012 10:54 am
meezergirl 3 hemangioparicytoma
Hawaii; native Texan
Sun Jan 29, 2012 12:57 am
Pat 4 hemangiopericytoma   Thu Aug 02, 2007 8:58 pm
christothor 0 hemangiopericytoma   Tue Feb 09, 2016 12:58 am
deggie 1 hemangiopericytoma   Wed Jan 18, 2012 2:27 am
Morty 0 hemangiopericytoma   Sat Dec 07, 2013 9:34 am
SuzyQ 2 hemangiopericytoma
Toronto, Ont. Can.
Tue Jan 31, 2012 11:44 am
hemangiopericytoma 1 hemangiopericytoma   Fri Sep 05, 2014 5:58 pm
jamer1971 0 juvenille pilocytic astrocytoma in the spinal cord   Fri Dec 07, 2012 8:02 pm
MauGav 0 meningeal hemangiopericytoma   Sun Jan 03, 2016 4:10 am
shmowser 0 meninges haemangeopericytoma   Tue Dec 09, 2014 7:07 pm
Sarah wife of Tom 1 papillary renal cell carcinoma! Brain tumor   Sun Oct 09, 2011 10:34 am
ctaf 0 paragangloma   Tue Nov 06, 2012 3:01 pm
eldmaw 0 primary central nervous system lymphoma ,NHL, in dura falx
Memphis, TN
Sun Jan 03, 2010 5:57 pm
dartbit 2 small-cell carcinoma
Lawrence, Kansas
Sun Oct 05, 2014 6:59 am
DeNeece1 2 spinal cord pilomyxoid astrocytoma   Mon Sep 13, 2010 9:59 pm
SCT63 3 stage 1 mucin secreting neoplasm   Mon Jun 09, 2014 3:52 pm