Brain, Spinal Cord, & CNS Tumors - Rare Adult & Pediatric

brain stem glioma, ependymoblastoma, hemangiopericytoma, germinoma, gliomatosis cerebri, lymphoma, meningioma, meningeal melanocytoma, meningeal sarcoma, oligodendroglioma, pineoblastoma This is an open group, members can apply to join.

RankGroup members Posts Cancer Diagnosis Website, Location Joined
Kelconlain 2 Supratentorial Primitive Neuroectodermal Tumor of the Central Nervous System   Fri Dec 12, 2014 10:43 pm
KimL 0 Haemangiopericytoma Brain   Sun Dec 03, 2017 5:51 pm
lisazavodsky 0 Desmoplastic Infantile Ganglioglioma Thu Dec 22, 2011 7:52 pm
lnichol 0 glioneulonal-tumor with neuropil-like islands   Sun May 03, 2015 4:38 am
Louise 0 Choroid plexus carcinoma   Sat Jan 27, 2018 1:40 pm
Lynette 1 Glioblastoma   Mon Oct 28, 2013 10:26 pm
madcityhkydad 1 Hemangiopericytoma
Monona, Wisconsin
Mon Sep 21, 2009 10:15 am
MauGav 0 meningeal hemangiopericytoma   Sun Jan 03, 2016 4:10 am
mcuijten 1 Desmoplastic Infantile Ganglioglioma   Mon Apr 22, 2013 2:55 am
mecken 0 Hemangiopericytoma of the Brain   Sun Oct 16, 2016 10:50 pm
meezergirl 3 hemangioparicytoma
Hawaii; native Texan
Sun Jan 29, 2012 12:57 am
michaelrtracey 1 Desmoplastic Infantile Ganglioglioma   Tue Aug 31, 2010 7:16 am
MissAlynn 1 Desmoplastic Infantile Ganglioglioma   Sun Apr 22, 2012 6:24 pm
Morgaine84 7 Adenoid cystic carcinoma of the breast   Wed Sep 02, 2009 7:53 am
Morty 0 hemangiopericytoma   Sat Dec 07, 2013 9:34 am
Myown Destiny 0 Breast Cancer & Malignant Hemangiopericytoma   Sat Jul 29, 2017 11:15 am
MysticMimi 0 Nuerfibromatosis 2, meningiomas, acoustic nueroma   Thu Jul 21, 2016 8:55 pm
nancyquam 1 Primary intraocular lymphoma   Fri Nov 16, 2007 6:36 am
nathans.family 2 desmoplastic infantile ganglioglioma   Mon Aug 09, 2010 7:40 am
nealemarie 0 gliomatosis cerebri   Sun Dec 04, 2011 11:53 pm
nitzans 0 Hemangiopericytoma   Mon Jul 11, 2016 2:51 pm
Dedicated Supporternora.cannon 334 basiloid squamous cell Stage 2
Portland TN
Thu Apr 19, 2012 6:56 pm
Pat 4 hemangiopericytoma   Thu Aug 02, 2007 8:58 pm
Paula j 0 Hemipercytoma grade 2   Tue Jan 09, 2018 4:36 pm
paulinec22 1 Gliomatsis Cerebri   Thu May 10, 2012 10:12 am
pfuller70517 1 gliomatosis cerebri   Tue Nov 17, 2009 11:38 am
Pollie 0 Glioblastoma cerebri   Sat Dec 03, 2016 6:28 am
Pretzels 0 astroblastoma/L2-spinal cord   Tue Jul 31, 2012 11:25 pm
redhatjudy 0 Merkel Cell Cancer   Tue Aug 18, 2015 12:47 pm
roseandtony 0 gliomatosis cerebri   Thu May 29, 2014 4:47 pm
rubend 0 Desmoplastic Infantile Ganglioglioma   Mon Jun 25, 2012 9:18 am
Sammyq 0 Clinal chordoma   Sun Aug 04, 2019 7:46 am
Sarah wife of Tom 1 papillary renal cell carcinoma! Brain tumor   Sun Oct 09, 2011 10:34 am
SCT63 3 stage 1 mucin secreting neoplasm   Mon Jun 09, 2014 3:52 pm
shmowser 0 meninges haemangeopericytoma   Tue Dec 09, 2014 7:07 pm
Shspiegel 0 Multiple meningioma   Thu Feb 28, 2013 3:19 pm
skoorb 0 Hemangiopericytoma   Wed Mar 22, 2017 7:37 am
susanna 0 Myofibroma or Desmoplastic Infantile Ganglioglioma   Tue Feb 12, 2013 3:29 am
SuzyQ 2 hemangiopericytoma
Toronto, Ont. Can.
Tue Jan 31, 2012 11:44 am
TEAMDP 0 nongerminomatous germ cell tumor   Wed Nov 18, 2020 11:26 am
TheLazyB 0 Hemangiopericytoma   Mon Jun 24, 2019 5:06 pm
themasterofall 0 Oligodendroglioma   Fri Nov 11, 2011 10:27 am
Thess3_13 1 Gliomatosis Cerebri   Fri May 10, 2013 3:32 pm
Thunder99 0 Hemangiopericytoma   Sun Feb 10, 2019 3:55 am
TilleryIsLoved 0 Desmoplastic Infantile Ganglioglioma   Thu Oct 09, 2014 6:24 pm
Treeby 1 Carotid Body Paraganglioma   Thu Sep 09, 2010 10:04 pm
T'smom 0 gliomatosis cerebri   Mon Apr 27, 2015 4:20 pm
VickyPrecious1234 0 Hemangiopericytoma   Wed Apr 23, 2014 2:25 am
vilinikolovabt 0 astrocytoma   Mon Aug 05, 2019 10:28 am

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