Brain, Spinal Cord, & CNS Tumors - Rare Adult & Pediatric

brain stem glioma, ependymoblastoma, hemangiopericytoma, germinoma, gliomatosis cerebri, lymphoma, meningioma, meningeal melanocytoma, meningeal sarcoma, oligodendroglioma, pineoblastoma This is an open group, members can apply to join.

Group members      
SCT63 3 stage 1 mucin secreting neoplasm   Mon Jun 09, 2014 3:52 pm
DeNeece1 2 spinal cord pilomyxoid astrocytoma   Mon Sep 13, 2010 9:59 pm
dartbit 2 small-cell carcinoma
Lawrence, Kansas
Sun Oct 05, 2014 6:59 am
eldmaw 0 primary central nervous system lymphoma ,NHL, in dura falx
Memphis, TN
Sun Jan 03, 2010 5:57 pm
ctaf 0 paragangloma   Tue Nov 06, 2012 3:01 pm
Sarah wife of Tom 1 papillary renal cell carcinoma! Brain tumor   Sun Oct 09, 2011 10:34 am
shmowser 0 meninges haemangeopericytoma   Tue Dec 09, 2014 7:07 pm
MauGav 0 meningeal hemangiopericytoma   Sun Jan 03, 2016 4:10 am
jamer1971 0 juvenille pilocytic astrocytoma in the spinal cord   Fri Dec 07, 2012 8:02 pm
Pat 4 hemangiopericytoma   Thu Aug 02, 2007 8:58 pm
christothor 0 hemangiopericytoma   Tue Feb 09, 2016 12:58 am
deggie 1 hemangiopericytoma   Wed Jan 18, 2012 2:27 am
Morty 0 hemangiopericytoma   Sat Dec 07, 2013 9:34 am
SuzyQ 2 hemangiopericytoma
Toronto, Ont. Can.
Tue Jan 31, 2012 11:44 am
hemangiopericytoma 1 hemangiopericytoma   Fri Sep 05, 2014 5:58 pm
meezergirl 3 hemangioparicytoma
Hawaii; native Texan
Sun Jan 29, 2012 12:57 am
bt1943 1 hemangio pericytoma   Sun Jul 01, 2012 10:54 am
Graham 1 haemangiopericytoma   Thu Sep 04, 2014 4:26 am
lnichol 0 glioneulonal-tumor with neuropil-like islands   Sun May 03, 2015 4:38 am
BlueTruly 2 gliomatosis cerebri/Oligodendroglioma
NOVA
Thu Apr 13, 2006 5:36 pm
bpp30m 0 gliomatosis cerebri   Sun May 06, 2012 9:46 pm
chenucat 1 gliomatosis cerebri   Mon Sep 21, 2009 1:37 am
pfuller70517 1 gliomatosis cerebri   Tue Nov 17, 2009 11:38 am
T'smom 0 gliomatosis cerebri   Mon Apr 27, 2015 4:20 pm
roseandtony 0 gliomatosis cerebri   Thu May 29, 2014 4:47 pm
nealemarie 0 gliomatosis cerebri   Sun Dec 04, 2011 11:53 pm
heroaustin 0 ganglioglioma brain tumor Braf v600e mutation   Sat May 19, 2018 9:30 pm
J'dens mom 0 desmoplastic infantile ganglioma   Sat Nov 26, 2011 11:41 pm
nathans.family 2 desmoplastic infantile ganglioglioma   Mon Aug 09, 2010 7:40 am
Iceberg 1 desmoplastic infantile ganglioglioma
Australia
Sat Apr 15, 2017 1:03 am
Dedicated Supporternora.cannon 334 basiloid squamous cell Stage 2
Portland TN
Thu Apr 19, 2012 6:56 pm
Pretzels 0 astroblastoma/L2-spinal cord   Tue Jul 31, 2012 11:25 pm
Alex19 0 anaplastic hemangiopericytoma, WHO grade III   Wed Jun 25, 2014 4:07 pm
Kelconlain 2 Supratentorial Primitive Neuroectodermal Tumor of the Central Nervous System   Fri Dec 12, 2014 10:43 pm
nancyquam 1 Primary intraocular lymphoma   Fri Nov 16, 2007 6:36 am
GracieJane 0 Primary Central Nervous System Lymphoma   Wed May 01, 2013 3:40 am
Craig Gilligan 1 Pineal Germ Cell Teratoma   Tue Feb 10, 2009 1:43 pm
ampsmom 0 Pilocytic Astrocytoma with Pilomyoid features   Sun Dec 18, 2011 7:04 pm
bongo1975 2 Phylloid tumor   Tue Dec 30, 2014 7:46 am
ajosef 1 PNET Medulloblastoma
Philadelphia
Fri Sep 04, 2009 6:43 am
Bono 1 PARAGANGLIOMA   Sun Mar 20, 2011 4:37 pm
Active Membergdpawel 36 Ovarian primary, metastatic to lung, brain mets, then Leptomeningeal Carcinomatous Tue Jul 10, 2007 11:18 pm
themasterofall 0 Oligodendroglioma   Fri Nov 11, 2011 10:27 am
MysticMimi 0 Nuerfibromatosis 2, meningiomas, acoustic nueroma   Thu Jul 21, 2016 8:55 pm
susanna 0 Myofibroma or Desmoplastic Infantile Ganglioglioma   Tue Feb 12, 2013 3:29 am
Shspiegel 0 Multiple meningioma   Thu Feb 28, 2013 3:19 pm
ali&sam 0 Metastatic Choroid Plexus Carcinoma   Wed Oct 31, 2012 4:40 pm
redhatjudy 0 Merkel Cell Cancer   Tue Aug 18, 2015 12:47 pm
Cindyb 0 Medulloblastoma   Tue Jul 31, 2012 10:04 am