Brain, Spinal Cord, & CNS Tumors - Rare Adult & Pediatric

brain stem glioma, ependymoblastoma, hemangiopericytoma, germinoma, gliomatosis cerebri, lymphoma, meningioma, meningeal melanocytoma, meningeal sarcoma, oligodendroglioma, pineoblastoma This is an open group, members can apply to join.

Group members      
Bono 1 PARAGANGLIOMA   Sun Mar 20, 2011 4:37 pm
MissAlynn 1 Desmoplastic Infantile Ganglioglioma   Sun Apr 22, 2012 6:24 pm
ali&sam 0 Metastatic Choroid Plexus Carcinoma   Wed Oct 31, 2012 4:40 pm
GracieJane 0 Primary Central Nervous System Lymphoma   Wed May 01, 2013 3:40 am
VickyPrecious1234 0 Hemangiopericytoma   Wed Apr 23, 2014 2:25 am
TilleryIsLoved 0 Desmoplastic Infantile Ganglioglioma   Thu Oct 09, 2014 6:24 pm
0208paula 0 Hemangiopericytoma   Mon Feb 29, 2016 4:56 pm
Iceberg 1 desmoplastic infantile ganglioglioma
Australia
Sat Apr 15, 2017 1:03 am
ChristinaMChiavetta 2 Gliomatosis Cerebri   Tue Jan 06, 2009 2:12 pm
chenucat 1 gliomatosis cerebri   Mon Sep 21, 2009 1:37 am
cretana 0 Hemangiopericytoma   Mon Nov 21, 2011 2:27 pm
bt1943 1 hemangio pericytoma   Sun Jul 01, 2012 10:54 am
jamer1971 0 juvenille pilocytic astrocytoma in the spinal cord   Fri Dec 07, 2012 8:02 pm
lnichol 0 glioneulonal-tumor with neuropil-like islands   Sun May 03, 2015 4:38 am
SCT63 3 stage 1 mucin secreting neoplasm   Mon Jun 09, 2014 3:52 pm
bongo1975 2 Phylloid tumor   Tue Dec 30, 2014 7:46 am
mecken 0 Hemangiopericytoma of the Brain   Sun Oct 16, 2016 10:50 pm
Pat 4 hemangiopericytoma   Thu Aug 02, 2007 8:58 pm
ajosef 1 PNET Medulloblastoma
Philadelphia
Fri Sep 04, 2009 6:43 am
Treeby 1 Carotid Body Paraganglioma   Thu Sep 09, 2010 10:04 pm
Sarah wife of Tom 1 papillary renal cell carcinoma! Brain tumor   Sun Oct 09, 2011 10:34 am
ampsmom 0 Pilocytic Astrocytoma with Pilomyoid features   Sun Dec 18, 2011 7:04 pm
Pretzels 0 astroblastoma/L2-spinal cord   Tue Jul 31, 2012 11:25 pm
craniums_up 0 Germ Cell Tumor/Yolk Sac/Teratoma   Sat Apr 13, 2013 7:33 pm
Morty 0 hemangiopericytoma   Sat Dec 07, 2013 9:34 am
hemangiopericytoma 1 hemangiopericytoma   Fri Sep 05, 2014 5:58 pm
MauGav 0 meningeal hemangiopericytoma   Sun Jan 03, 2016 4:10 am
skoorb 0 Hemangiopericytoma   Wed Mar 22, 2017 7:37 am
BlueTruly 2 gliomatosis cerebri/Oligodendroglioma
NOVA
Thu Apr 13, 2006 5:36 pm
nathans.family 2 desmoplastic infantile ganglioglioma   Mon Aug 09, 2010 7:40 am
bpp30m 0 gliomatosis cerebri   Sun May 06, 2012 9:46 pm
cafagan 0 Choroid Plexus Papiloma and then Carcinoma   Fri Nov 02, 2012 8:31 am
Thess3_13 1 Gliomatosis Cerebri   Fri May 10, 2013 3:32 pm
1robert2 0 Gliomatosis Cerebri   Sat May 31, 2014 4:09 pm
shmowser 0 meninges haemangeopericytoma   Tue Dec 09, 2014 7:07 pm
nitzans 0 Hemangiopericytoma   Mon Jul 11, 2016 2:51 pm
Myown Destiny 0 Breast Cancer & Malignant Hemangiopericytoma   Sat Jul 29, 2017 11:15 am
meezergirl 3 hemangioparicytoma
Hawaii; native Texan
Sun Jan 29, 2012 12:57 am
eldmaw 0 primary central nervous system lymphoma ,NHL, in dura falx
Memphis, TN
Sun Jan 03, 2010 5:57 pm
pfuller70517 1 gliomatosis cerebri   Tue Nov 17, 2009 11:38 am
nealemarie 0 gliomatosis cerebri   Sun Dec 04, 2011 11:53 pm
rubend 0 Desmoplastic Infantile Ganglioglioma   Mon Jun 25, 2012 9:18 am
susanna 0 Myofibroma or Desmoplastic Infantile Ganglioglioma   Tue Feb 12, 2013 3:29 am
Lynette 1 Glioblastoma   Mon Oct 28, 2013 10:26 pm
Alex19 0 anaplastic hemangiopericytoma, WHO grade III   Wed Jun 25, 2014 4:07 pm
redhatjudy 0 Merkel Cell Cancer   Tue Aug 18, 2015 12:47 pm
Pollie 0 Glioblastoma cerebri   Sat Dec 03, 2016 6:28 am
Active MemberJMMM 22 Gliomatosis Cerebri   Tue Mar 07, 2006 11:24 am
Morgaine84 7 Adenoid cystic carcinoma of the breast   Wed Sep 02, 2009 7:53 am