Brain, Spinal Cord, & CNS Tumors - Rare Adult & Pediatric

brain stem glioma, ependymoblastoma, hemangiopericytoma, germinoma, gliomatosis cerebri, lymphoma, meningioma, meningeal melanocytoma, meningeal sarcoma, oligodendroglioma, pineoblastoma This is an open group, members can apply to join.

Group members      
SuzyQ 2 hemangiopericytoma
Toronto, Ont. Can.
Tue Jan 31, 2012 11:44 am
Dedicated Supporternora.cannon 334 basiloid squamous cell Stage 2
Portland TN
Thu Apr 19, 2012 6:56 pm
ajosef 1 PNET Medulloblastoma
Philadelphia
Fri Sep 04, 2009 6:43 am
Dutch14 0 Germ Cell Brain Tumour
North Coast Queensland Australia
Mon Feb 20, 2012 9:20 pm
BlueTruly 2 gliomatosis cerebri/Oligodendroglioma
NOVA
Thu Apr 13, 2006 5:36 pm
madcityhkydad 1 Hemangiopericytoma
Monona, Wisconsin
Mon Sep 21, 2009 10:15 am
eldmaw 0 primary central nervous system lymphoma ,NHL, in dura falx
Memphis, TN
Sun Jan 03, 2010 5:57 pm
dartbit 2 small-cell carcinoma
Lawrence, Kansas
Sun Oct 05, 2014 6:59 am
meezergirl 3 hemangioparicytoma
Hawaii; native Texan
Sun Jan 29, 2012 12:57 am
Iceberg 1 desmoplastic infantile ganglioglioma
Australia
Sat Apr 15, 2017 1:03 am
cafagan 0 Choroid Plexus Papiloma and then Carcinoma   Fri Nov 02, 2012 8:31 am
nitzans 0 Hemangiopericytoma   Mon Jul 11, 2016 2:51 pm
MissAlynn 1 Desmoplastic Infantile Ganglioglioma   Sun Apr 22, 2012 6:24 pm
TilleryIsLoved 0 Desmoplastic Infantile Ganglioglioma   Thu Oct 09, 2014 6:24 pm
jbn8 1 Glial-Neuronal type tumors   Sun Jan 23, 2011 8:52 am
frieda4 0 Desmoplastic Infantile Ganglioglioma   Sat Jan 25, 2014 4:21 pm
Louise 0 Choroid plexus carcinoma   Sat Jan 27, 2018 1:40 pm
nathans.family 2 desmoplastic infantile ganglioglioma   Mon Aug 09, 2010 7:40 am
craniums_up 0 Germ Cell Tumor/Yolk Sac/Teratoma   Sat Apr 13, 2013 7:33 pm
skoorb 0 Hemangiopericytoma   Wed Mar 22, 2017 7:37 am
nancyquam 1 Primary intraocular lymphoma   Fri Nov 16, 2007 6:36 am
Cindyb 0 Medulloblastoma   Tue Jul 31, 2012 10:04 am
Drecazz 1 Giant Cell Carcinoma of the Spine   Sat Nov 07, 2015 10:07 am
nealemarie 0 gliomatosis cerebri   Sun Dec 04, 2011 11:53 pm
Alex19 0 anaplastic hemangiopericytoma, WHO grade III   Wed Jun 25, 2014 4:07 pm
Treeby 1 Carotid Body Paraganglioma   Thu Sep 09, 2010 10:04 pm
lnichol 0 glioneulonal-tumor with neuropil-like islands   Sun May 03, 2015 4:38 am
KimL 0 Haemangiopericytoma Brain   Sun Dec 03, 2017 5:51 pm
ctaf 0 paragangloma   Tue Nov 06, 2012 3:01 pm
MysticMimi 0 Nuerfibromatosis 2, meningiomas, acoustic nueroma   Thu Jul 21, 2016 8:55 pm
bpp30m 0 gliomatosis cerebri   Sun May 06, 2012 9:46 pm
shmowser 0 meninges haemangeopericytoma   Tue Dec 09, 2014 7:07 pm
Bono 1 PARAGANGLIOMA   Sun Mar 20, 2011 4:37 pm
VickyPrecious1234 0 Hemangiopericytoma   Wed Apr 23, 2014 2:25 am
jingyilin 0 Germ cell tumor in Pineal & Pituitary Gland   Tue Mar 13, 2018 7:28 pm
michaelrtracey 1 Desmoplastic Infantile Ganglioglioma   Tue Aug 31, 2010 7:16 am
mcuijten 1 Desmoplastic Infantile Ganglioglioma   Mon Apr 22, 2013 2:55 am
Ellys1607 0 Choroid plexus carcinoma   Tue Apr 11, 2017 3:45 pm
Pretzels 0 astroblastoma/L2-spinal cord   Tue Jul 31, 2012 11:25 pm
MauGav 0 meningeal hemangiopericytoma   Sun Jan 03, 2016 4:10 am
Graham 1 haemangiopericytoma   Thu Sep 04, 2014 4:26 am
DeNeece1 2 spinal cord pilomyxoid astrocytoma   Mon Sep 13, 2010 9:59 pm
Lynette 1 Glioblastoma   Mon Oct 28, 2013 10:26 pm
Dfarquhar 0 Hemangiopericytoma   Sun Dec 17, 2017 5:36 pm
jamer1971 0 juvenille pilocytic astrocytoma in the spinal cord   Fri Dec 07, 2012 8:02 pm
mecken 0 Hemangiopericytoma of the Brain   Sun Oct 16, 2016 10:50 pm
J'dens mom 0 desmoplastic infantile ganglioma   Sat Nov 26, 2011 11:41 pm
paulinec22 1 Gliomatsis Cerebri   Thu May 10, 2012 10:12 am
Kelconlain 2 Supratentorial Primitive Neuroectodermal Tumor of the Central Nervous System   Fri Dec 12, 2014 10:43 pm