Brain, Spinal Cord, & CNS Tumors - Rare Adult & Pediatric

brain stem glioma, ependymoblastoma, hemangiopericytoma, germinoma, gliomatosis cerebri, lymphoma, meningioma, meningeal melanocytoma, meningeal sarcoma, oligodendroglioma, pineoblastoma This is an open group, members can apply to join.

Group members      
VickyPrecious1234 0 Hemangiopericytoma   Wed Apr 23, 2014 2:25 am
T'smom 0 gliomatosis cerebri   Mon Apr 27, 2015 4:20 pm
Treeby 1 Carotid Body Paraganglioma   Thu Sep 09, 2010 10:04 pm
TilleryIsLoved 0 Desmoplastic Infantile Ganglioglioma   Thu Oct 09, 2014 6:24 pm
Thess3_13 1 Gliomatosis Cerebri   Fri May 10, 2013 3:32 pm
themasterofall 0 Oligodendroglioma   Fri Nov 11, 2011 10:27 am
SuzyQ 2 hemangiopericytoma
Toronto, Ont. Can.
Tue Jan 31, 2012 11:44 am
susanna 0 Myofibroma or Desmoplastic Infantile Ganglioglioma   Tue Feb 12, 2013 3:29 am
skoorb 0 Hemangiopericytoma   Wed Mar 22, 2017 7:37 am
Shspiegel 0 Multiple meningioma   Thu Feb 28, 2013 3:19 pm
shmowser 0 meninges haemangeopericytoma   Tue Dec 09, 2014 7:07 pm
SCT63 3 stage 1 mucin secreting neoplasm   Mon Jun 09, 2014 3:52 pm
Sarah wife of Tom 1 papillary renal cell carcinoma! Brain tumor   Sun Oct 09, 2011 10:34 am
rubend 0 Desmoplastic Infantile Ganglioglioma   Mon Jun 25, 2012 9:18 am
roseandtony 0 gliomatosis cerebri   Thu May 29, 2014 4:47 pm
redhatjudy 0 Merkel Cell Cancer   Tue Aug 18, 2015 12:47 pm
Pretzels 0 astroblastoma/L2-spinal cord   Tue Jul 31, 2012 11:25 pm
Pollie 0 Glioblastoma cerebri   Sat Dec 03, 2016 6:28 am
pfuller70517 1 gliomatosis cerebri   Tue Nov 17, 2009 11:38 am
paulinec22 1 Gliomatsis Cerebri   Thu May 10, 2012 10:12 am
Pat 4 hemangiopericytoma   Thu Aug 02, 2007 8:58 pm
Dedicated Supporternora.cannon 334 basiloid squamous cell Stage 2
Portland TN
Thu Apr 19, 2012 6:56 pm
nitzans 0 Hemangiopericytoma   Mon Jul 11, 2016 2:51 pm
nealemarie 0 gliomatosis cerebri   Sun Dec 04, 2011 11:53 pm
nathans.family 2 desmoplastic infantile ganglioglioma   Mon Aug 09, 2010 7:40 am
nancyquam 1 Primary intraocular lymphoma   Fri Nov 16, 2007 6:36 am
MysticMimi 0 Nuerfibromatosis 2, meningiomas, acoustic nueroma   Thu Jul 21, 2016 8:55 pm
Myown Destiny 0 Breast Cancer & Malignant Hemangiopericytoma   Sat Jul 29, 2017 11:15 am
Morty 0 hemangiopericytoma   Sat Dec 07, 2013 9:34 am
Morgaine84 7 Adenoid cystic carcinoma of the breast   Wed Sep 02, 2009 7:53 am
MissAlynn 1 Desmoplastic Infantile Ganglioglioma   Sun Apr 22, 2012 6:24 pm
michaelrtracey 1 Desmoplastic Infantile Ganglioglioma   Tue Aug 31, 2010 7:16 am
meezergirl 3 hemangioparicytoma
Hawaii; native Texan
Sun Jan 29, 2012 12:57 am
mecken 0 Hemangiopericytoma of the Brain   Sun Oct 16, 2016 10:50 pm
mcuijten 1 Desmoplastic Infantile Ganglioglioma   Mon Apr 22, 2013 2:55 am
MauGav 0 meningeal hemangiopericytoma   Sun Jan 03, 2016 4:10 am
madcityhkydad 1 Hemangiopericytoma
Monona, Wisconsin
Mon Sep 21, 2009 10:15 am
Lynette 1 Glioblastoma   Mon Oct 28, 2013 10:26 pm
lnichol 0 glioneulonal-tumor with neuropil-like islands   Sun May 03, 2015 4:38 am
lisazavodsky 0 Desmoplastic Infantile Ganglioglioma Thu Dec 22, 2011 7:52 pm
KimL 0 Haemangiopericytoma Brain   Sun Dec 03, 2017 5:51 pm
Kelconlain 2 Supratentorial Primitive Neuroectodermal Tumor of the Central Nervous System   Fri Dec 12, 2014 10:43 pm
J'dens mom 0 desmoplastic infantile ganglioma   Sat Nov 26, 2011 11:41 pm
joshone 0 Hemangiopericytoma Brain Tumour   Tue Oct 24, 2017 10:32 am
Active MemberJMMM 22 Gliomatosis Cerebri   Tue Mar 07, 2006 11:24 am
jbn8 1 Glial-Neuronal type tumors   Sun Jan 23, 2011 8:52 am
jamer1971 0 juvenille pilocytic astrocytoma in the spinal cord   Fri Dec 07, 2012 8:02 pm
Iceberg 1 desmoplastic infantile ganglioglioma
Australia
Sat Apr 15, 2017 1:03 am
hemangiopericytoma 1 hemangiopericytoma   Fri Sep 05, 2014 5:58 pm

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