Brain, Spinal Cord, & CNS Tumors - Rare Adult & Pediatric

brain stem glioma, ependymoblastoma, hemangiopericytoma, germinoma, gliomatosis cerebri, lymphoma, meningioma, meningeal melanocytoma, meningeal sarcoma, oligodendroglioma, pineoblastoma This is an open group, members can apply to join.

Group members      
Bugaroo 0 Hemangiopericytoma   Sat Jan 14, 2017 11:10 pm
Brianna 0 Chroid plexus carcinoma   Sun Dec 17, 2017 8:14 pm
Sammyq 0 Clinal chordoma   Sun Aug 04, 2019 7:46 am
nancyquam 1 Primary intraocular lymphoma   Fri Nov 16, 2007 6:36 am
Craig Gilligan 1 Pineal Germ Cell Teratoma   Tue Feb 10, 2009 1:43 pm
deggie 1 hemangiopericytoma   Wed Jan 18, 2012 2:27 am
SuzyQ 2 hemangiopericytoma
Toronto, Ont. Can.
Tue Jan 31, 2012 11:44 am
Cindyb 0 Medulloblastoma   Tue Jul 31, 2012 10:04 am
Shspiegel 0 Multiple meningioma   Thu Feb 28, 2013 3:19 pm
dward555 3 Desmoplastic Infantile Ganglioglioma   Sat Nov 02, 2013 8:12 am
Graham 1 haemangiopericytoma   Thu Sep 04, 2014 4:26 am
Drecazz 1 Giant Cell Carcinoma of the Spine   Sat Nov 07, 2015 10:07 am
Iceberg 1 desmoplastic infantile ganglioglioma
Australia
Sat Apr 15, 2017 1:03 am
jingyilin 0 Germ cell tumor in Pineal & Pituitary Gland   Tue Mar 13, 2018 7:28 pm
TEAMDP 0 nongerminomatous germ cell tumor   Wed Nov 18, 2020 11:26 am
ChristinaMChiavetta 2 Gliomatosis Cerebri   Tue Jan 06, 2009 2:12 pm
chenucat 1 gliomatosis cerebri   Mon Sep 21, 2009 1:37 am
Bono 1 PARAGANGLIOMA   Sun Mar 20, 2011 4:37 pm
MissAlynn 1 Desmoplastic Infantile Ganglioglioma   Sun Apr 22, 2012 6:24 pm
ali&sam 0 Metastatic Choroid Plexus Carcinoma   Wed Oct 31, 2012 4:40 pm
GracieJane 0 Primary Central Nervous System Lymphoma   Wed May 01, 2013 3:40 am
VickyPrecious1234 0 Hemangiopericytoma   Wed Apr 23, 2014 2:25 am
TilleryIsLoved 0 Desmoplastic Infantile Ganglioglioma   Thu Oct 09, 2014 6:24 pm
0208paula 0 Hemangiopericytoma   Mon Feb 29, 2016 4:56 pm
KimL 0 Haemangiopericytoma Brain   Sun Dec 03, 2017 5:51 pm
AMC76 0 hemangiopericytoma   Wed Feb 27, 2019 8:02 am
Pat 4 hemangiopericytoma   Thu Aug 02, 2007 8:58 pm
ajosef 1 PNET Medulloblastoma
Philadelphia
Fri Sep 04, 2009 6:43 am
Treeby 1 Carotid Body Paraganglioma   Thu Sep 09, 2010 10:04 pm
cretana 0 Hemangiopericytoma   Mon Nov 21, 2011 2:27 pm
bt1943 1 hemangio pericytoma   Sun Jul 01, 2012 10:54 am
jamer1971 0 juvenille pilocytic astrocytoma in the spinal cord   Fri Dec 07, 2012 8:02 pm
lnichol 0 glioneulonal-tumor with neuropil-like islands   Sun May 03, 2015 4:38 am
SCT63 3 stage 1 mucin secreting neoplasm   Mon Jun 09, 2014 3:52 pm
bongo1975 2 Phylloid tumor   Tue Dec 30, 2014 7:46 am
mecken 0 Hemangiopericytoma of the Brain   Sun Oct 16, 2016 10:50 pm
skoorb 0 Hemangiopericytoma   Wed Mar 22, 2017 7:37 am
Paula j 0 Hemipercytoma grade 2   Tue Jan 09, 2018 4:36 pm
vilinikolovabt 0 astrocytoma   Mon Aug 05, 2019 10:28 am
BlueTruly 2 gliomatosis cerebri/Oligodendroglioma
NOVA
Thu Apr 13, 2006 5:36 pm
nathans.family 2 desmoplastic infantile ganglioglioma   Mon Aug 09, 2010 7:40 am
Sarah wife of Tom 1 papillary renal cell carcinoma! Brain tumor   Sun Oct 09, 2011 10:34 am
ampsmom 0 Pilocytic Astrocytoma with Pilomyoid features   Sun Dec 18, 2011 7:04 pm
Pretzels 0 astroblastoma/L2-spinal cord   Tue Jul 31, 2012 11:25 pm
craniums_up 0 Germ Cell Tumor/Yolk Sac/Teratoma   Sat Apr 13, 2013 7:33 pm
Morty 0 hemangiopericytoma   Sat Dec 07, 2013 9:34 am
hemangiopericytoma 1 hemangiopericytoma   Fri Sep 05, 2014 5:58 pm
MauGav 0 meningeal hemangiopericytoma   Sun Jan 03, 2016 4:10 am
Myown Destiny 0 Breast Cancer & Malignant Hemangiopericytoma   Sat Jul 29, 2017 11:15 am

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