Brain, Spinal Cord, & CNS Tumors - Rare Adult & Pediatric

brain stem glioma, ependymoblastoma, hemangiopericytoma, germinoma, gliomatosis cerebri, lymphoma, meningioma, meningeal melanocytoma, meningeal sarcoma, oligodendroglioma, pineoblastoma This is an open group, members can apply to join.

Group members      
GracieJane 0 Primary Central Nervous System Lymphoma   Wed May 01, 2013 3:40 am
TilleryIsLoved 0 Desmoplastic Infantile Ganglioglioma   Thu Oct 09, 2014 6:24 pm
bpp30m 0 gliomatosis cerebri   Sun May 06, 2012 9:46 pm
shmowser 0 meninges haemangeopericytoma   Tue Dec 09, 2014 7:07 pm
Myown Destiny 0 Breast Cancer & Malignant Hemangiopericytoma   Sat Jul 29, 2017 11:15 am
J'dens mom 0 desmoplastic infantile ganglioma   Sat Nov 26, 2011 11:41 pm
T'smom 0 gliomatosis cerebri   Mon Apr 27, 2015 4:20 pm
lnichol 0 glioneulonal-tumor with neuropil-like islands   Sun May 03, 2015 4:38 am
rubend 0 Desmoplastic Infantile Ganglioglioma   Mon Jun 25, 2012 9:18 am
redhatjudy 0 Merkel Cell Cancer   Tue Aug 18, 2015 12:47 pm
Cindyb 0 Medulloblastoma   Tue Jul 31, 2012 10:04 am
Pretzels 0 astroblastoma/L2-spinal cord   Tue Jul 31, 2012 11:25 pm
Morty 0 hemangiopericytoma   Sat Dec 07, 2013 9:34 am
MauGav 0 meningeal hemangiopericytoma   Sun Jan 03, 2016 4:10 am
frieda4 0 Desmoplastic Infantile Ganglioglioma   Sat Jan 25, 2014 4:21 pm
christothor 0 hemangiopericytoma   Tue Feb 09, 2016 12:58 am
ali&sam 0 Metastatic Choroid Plexus Carcinoma   Wed Oct 31, 2012 4:40 pm
VickyPrecious1234 0 Hemangiopericytoma   Wed Apr 23, 2014 2:25 am
0208paula 0 Hemangiopericytoma   Mon Feb 29, 2016 4:56 pm
eldmaw 0 primary central nervous system lymphoma ,NHL, in dura falx
Memphis, TN
Sun Jan 03, 2010 5:57 pm
lisazavodsky 0 Desmoplastic Infantile Ganglioglioma Thu Dec 22, 2011 7:52 pm
cafagan 0 Choroid Plexus Papiloma and then Carcinoma   Fri Nov 02, 2012 8:31 am
1robert2 0 Gliomatosis Cerebri   Sat May 31, 2014 4:09 pm
nitzans 0 Hemangiopericytoma   Mon Jul 11, 2016 2:51 pm
Dutch14 0 Germ Cell Brain Tumour
North Coast Queensland Australia
Mon Feb 20, 2012 9:20 pm
themasterofall 0 Oligodendroglioma   Fri Nov 11, 2011 10:27 am
ctaf 0 paragangloma   Tue Nov 06, 2012 3:01 pm
roseandtony 0 gliomatosis cerebri   Thu May 29, 2014 4:47 pm
MysticMimi 0 Nuerfibromatosis 2, meningiomas, acoustic nueroma   Thu Jul 21, 2016 8:55 pm
cretana 0 Hemangiopericytoma   Mon Nov 21, 2011 2:27 pm
jamer1971 0 juvenille pilocytic astrocytoma in the spinal cord   Fri Dec 07, 2012 8:02 pm
mecken 0 Hemangiopericytoma of the Brain   Sun Oct 16, 2016 10:50 pm
nealemarie 0 gliomatosis cerebri   Sun Dec 04, 2011 11:53 pm
susanna 0 Myofibroma or Desmoplastic Infantile Ganglioglioma   Tue Feb 12, 2013 3:29 am
Alex19 0 anaplastic hemangiopericytoma, WHO grade III   Wed Jun 25, 2014 4:07 pm
Pollie 0 Glioblastoma cerebri   Sat Dec 03, 2016 6:28 am
Shspiegel 0 Multiple meningioma   Thu Feb 28, 2013 3:19 pm
Bugaroo 0 Hemangiopericytoma   Sat Jan 14, 2017 11:10 pm
ampsmom 0 Pilocytic Astrocytoma with Pilomyoid features   Sun Dec 18, 2011 7:04 pm
craniums_up 0 Germ Cell Tumor/Yolk Sac/Teratoma   Sat Apr 13, 2013 7:33 pm
skoorb 0 Hemangiopericytoma   Wed Mar 22, 2017 7:37 am
Clementine S. 0 Giant Cell Tumor of Sacrum   Fri Mar 09, 2012 6:09 pm
Ellys1607 0 Choroid plexus carcinoma   Tue Apr 11, 2017 3:45 pm
chenucat 1 gliomatosis cerebri   Mon Sep 21, 2009 1:37 am
MissAlynn 1 Desmoplastic Infantile Ganglioglioma   Sun Apr 22, 2012 6:24 pm
Iceberg 1 desmoplastic infantile ganglioglioma
Australia
Sat Apr 15, 2017 1:03 am
pfuller70517 1 gliomatosis cerebri   Tue Nov 17, 2009 11:38 am
Thess3_13 1 Gliomatosis Cerebri   Fri May 10, 2013 3:32 pm
madcityhkydad 1 Hemangiopericytoma
Monona, Wisconsin
Mon Sep 21, 2009 10:15 am