Brain, Spinal Cord, & CNS Tumors - Rare Adult & Pediatric

brain stem glioma, ependymoblastoma, hemangiopericytoma, germinoma, gliomatosis cerebri, lymphoma, meningioma, meningeal melanocytoma, meningeal sarcoma, oligodendroglioma, pineoblastoma This is an open group, members can apply to join.

Group members      
SuzyQ 2 hemangiopericytoma
Toronto, Ont. Can.
Tue Jan 31, 2012 11:44 am
Dedicated Supporternora.cannon 334 basiloid squamous cell Stage 2
Portland TN
Thu Apr 19, 2012 6:56 pm
ajosef 1 PNET Medulloblastoma
Philadelphia
Fri Sep 04, 2009 6:43 am
Dutch14 0 Germ Cell Brain Tumour
North Coast Queensland Australia
Mon Feb 20, 2012 9:20 pm
BlueTruly 2 gliomatosis cerebri/Oligodendroglioma
NOVA
Thu Apr 13, 2006 5:36 pm
madcityhkydad 1 Hemangiopericytoma
Monona, Wisconsin
Mon Sep 21, 2009 10:15 am
eldmaw 0 primary central nervous system lymphoma ,NHL, in dura falx
Memphis, TN
Sun Jan 03, 2010 5:57 pm
dartbit 2 small-cell carcinoma
Lawrence, Kansas
Sun Oct 05, 2014 6:59 am
meezergirl 3 hemangioparicytoma
Hawaii; native Texan
Sun Jan 29, 2012 12:57 am
Iceberg 1 desmoplastic infantile ganglioglioma
Australia
Sat Apr 15, 2017 1:03 am
Myown Destiny 0 Breast Cancer & Malignant Hemangiopericytoma   Sat Jul 29, 2017 11:15 am
pfuller70517 1 gliomatosis cerebri   Tue Nov 17, 2009 11:38 am
Thess3_13 1 Gliomatosis Cerebri   Fri May 10, 2013 3:32 pm
0208paula 0 Hemangiopericytoma   Mon Feb 29, 2016 4:56 pm
ChristinaMChiavetta 2 Gliomatosis Cerebri   Tue Jan 06, 2009 2:12 pm
ali&sam 0 Metastatic Choroid Plexus Carcinoma   Wed Oct 31, 2012 4:40 pm
cskinnju 0 Adenoid cystic carcinoma of skull base   Wed Sep 25, 2019 6:40 am
Clementine S. 0 Giant Cell Tumor of Sacrum   Fri Mar 09, 2012 6:09 pm
Paula j 0 Hemipercytoma grade 2   Tue Jan 09, 2018 4:36 pm
Sarah wife of Tom 1 papillary renal cell carcinoma! Brain tumor   Sun Oct 09, 2011 10:34 am
Morty 0 hemangiopericytoma   Sat Dec 07, 2013 9:34 am
Bugaroo 0 Hemangiopericytoma   Sat Jan 14, 2017 11:10 pm
Craig Gilligan 1 Pineal Germ Cell Teratoma   Tue Feb 10, 2009 1:43 pm
Shspiegel 0 Multiple meningioma   Thu Feb 28, 2013 3:19 pm
Active MemberJMMM 22 Gliomatosis Cerebri   Tue Mar 07, 2006 11:24 am
rubend 0 Desmoplastic Infantile Ganglioglioma   Mon Jun 25, 2012 9:18 am
redhatjudy 0 Merkel Cell Cancer   Tue Aug 18, 2015 12:47 pm
AMC76 0 hemangiopericytoma   Wed Feb 27, 2019 8:02 am
cretana 0 Hemangiopericytoma   Mon Nov 21, 2011 2:27 pm
SCT63 3 stage 1 mucin secreting neoplasm   Mon Jun 09, 2014 3:52 pm
joshone 0 Hemangiopericytoma Brain Tumour   Tue Oct 24, 2017 10:32 am
T'smom 0 gliomatosis cerebri   Mon Apr 27, 2015 4:20 pm
nitzans 0 Hemangiopericytoma   Mon Jul 11, 2016 2:51 pm
cafagan 0 Choroid Plexus Papiloma and then Carcinoma   Fri Nov 02, 2012 8:31 am
TEAMDP 0 nongerminomatous germ cell tumor   Wed Nov 18, 2020 11:26 am
MissAlynn 1 Desmoplastic Infantile Ganglioglioma   Sun Apr 22, 2012 6:24 pm
TilleryIsLoved 0 Desmoplastic Infantile Ganglioglioma   Thu Oct 09, 2014 6:24 pm
Louise 0 Choroid plexus carcinoma   Sat Jan 27, 2018 1:40 pm
jbn8 1 Glial-Neuronal type tumors   Sun Jan 23, 2011 8:52 am
frieda4 0 Desmoplastic Infantile Ganglioglioma   Sat Jan 25, 2014 4:21 pm
skoorb 0 Hemangiopericytoma   Wed Mar 22, 2017 7:37 am
nathans.family 2 desmoplastic infantile ganglioglioma   Mon Aug 09, 2010 7:40 am
craniums_up 0 Germ Cell Tumor/Yolk Sac/Teratoma   Sat Apr 13, 2013 7:33 pm
nancyquam 1 Primary intraocular lymphoma   Fri Nov 16, 2007 6:36 am
Cindyb 0 Medulloblastoma   Tue Jul 31, 2012 10:04 am
Drecazz 1 Giant Cell Carcinoma of the Spine   Sat Nov 07, 2015 10:07 am
TheLazyB 0 Hemangiopericytoma   Mon Jun 24, 2019 5:06 pm
nealemarie 0 gliomatosis cerebri   Sun Dec 04, 2011 11:53 pm
Alex19 0 anaplastic hemangiopericytoma, WHO grade III   Wed Jun 25, 2014 4:07 pm

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