Brain, Spinal Cord, & CNS Tumors - Rare Adult & Pediatric

brain stem glioma, ependymoblastoma, hemangiopericytoma, germinoma, gliomatosis cerebri, lymphoma, meningioma, meningeal melanocytoma, meningeal sarcoma, oligodendroglioma, pineoblastoma This is an open group, members can apply to join.

Group members      
Morgaine84 7 Adenoid cystic carcinoma of the breast   Wed Sep 02, 2009 7:53 am
Treeby 1 Carotid Body Paraganglioma   Thu Sep 09, 2010 10:04 pm
cafagan 0 Choroid Plexus Papiloma and then Carcinoma   Fri Nov 02, 2012 8:31 am
Ellys1607 0 Choroid plexus carcinoma   Tue Apr 11, 2017 3:45 pm
mcuijten 1 Desmoplastic Infantile Ganglioglioma   Mon Apr 22, 2013 2:55 am
michaelrtracey 1 Desmoplastic Infantile Ganglioglioma   Tue Aug 31, 2010 7:16 am
dward555 3 Desmoplastic Infantile Ganglioglioma   Sat Nov 02, 2013 8:12 am
frieda4 0 Desmoplastic Infantile Ganglioglioma   Sat Jan 25, 2014 4:21 pm
lisazavodsky 0 Desmoplastic Infantile Ganglioglioma Thu Dec 22, 2011 7:52 pm
MissAlynn 1 Desmoplastic Infantile Ganglioglioma   Sun Apr 22, 2012 6:24 pm
TilleryIsLoved 0 Desmoplastic Infantile Ganglioglioma   Thu Oct 09, 2014 6:24 pm
rubend 0 Desmoplastic Infantile Ganglioglioma   Mon Jun 25, 2012 9:18 am
Dutch14 0 Germ Cell Brain Tumour
North Coast Queensland Australia
Mon Feb 20, 2012 9:20 pm
craniums_up 0 Germ Cell Tumor/Yolk Sac/Teratoma   Sat Apr 13, 2013 7:33 pm
Drecazz 1 Giant Cell Carcinoma of the Spine   Sat Nov 07, 2015 10:07 am
Clementine S. 0 Giant Cell Tumor of Sacrum   Fri Mar 09, 2012 6:09 pm
jbn8 1 Glial-Neuronal type tumors   Sun Jan 23, 2011 8:52 am
Lynette 1 Glioblastoma   Mon Oct 28, 2013 10:26 pm
Pollie 0 Glioblastoma cerebri   Sat Dec 03, 2016 6:28 am
Thess3_13 1 Gliomatosis Cerebri   Fri May 10, 2013 3:32 pm
1robert2 0 Gliomatosis Cerebri   Sat May 31, 2014 4:09 pm
Active MemberJMMM 22 Gliomatosis Cerebri   Tue Mar 07, 2006 11:24 am
ChristinaMChiavetta 2 Gliomatosis Cerebri   Tue Jan 06, 2009 2:12 pm
paulinec22 1 Gliomatsis Cerebri   Thu May 10, 2012 10:12 am
Bugaroo 0 Hemangiopericytoma   Sat Jan 14, 2017 11:10 pm
skoorb 0 Hemangiopericytoma   Wed Mar 22, 2017 7:37 am
madcityhkydad 1 Hemangiopericytoma
Monona, Wisconsin
Mon Sep 21, 2009 10:15 am
VickyPrecious1234 0 Hemangiopericytoma   Wed Apr 23, 2014 2:25 am
cretana 0 Hemangiopericytoma   Mon Nov 21, 2011 2:27 pm
0208paula 0 Hemangiopericytoma   Mon Feb 29, 2016 4:56 pm
nitzans 0 Hemangiopericytoma   Mon Jul 11, 2016 2:51 pm
mecken 0 Hemangiopericytoma of the Brain   Sun Oct 16, 2016 10:50 pm
Cindyb 0 Medulloblastoma   Tue Jul 31, 2012 10:04 am
redhatjudy 0 Merkel Cell Cancer   Tue Aug 18, 2015 12:47 pm
ali&sam 0 Metastatic Choroid Plexus Carcinoma   Wed Oct 31, 2012 4:40 pm
Shspiegel 0 Multiple meningioma   Thu Feb 28, 2013 3:19 pm
susanna 0 Myofibroma or Desmoplastic Infantile Ganglioglioma   Tue Feb 12, 2013 3:29 am
MysticMimi 0 Nuerfibromatosis 2, meningiomas, acoustic nueroma   Thu Jul 21, 2016 8:55 pm
themasterofall 0 Oligodendroglioma   Fri Nov 11, 2011 10:27 am
Active Membergdpawel 36 Ovarian primary, metastatic to lung, brain mets, then Leptomeningeal Carcinomatous Tue Jul 10, 2007 11:18 pm
Bono 1 PARAGANGLIOMA   Sun Mar 20, 2011 4:37 pm
ajosef 1 PNET Medulloblastoma
Philadelphia
Fri Sep 04, 2009 6:43 am
bongo1975 2 Phylloid tumor   Tue Dec 30, 2014 7:46 am
ampsmom 0 Pilocytic Astrocytoma with Pilomyoid features   Sun Dec 18, 2011 7:04 pm
Craig Gilligan 1 Pineal Germ Cell Teratoma   Tue Feb 10, 2009 1:43 pm
GracieJane 0 Primary Central Nervous System Lymphoma   Wed May 01, 2013 3:40 am
nancyquam 1 Primary intraocular lymphoma   Fri Nov 16, 2007 6:36 am
Kelconlain 2 Supratentorial Primitive Neuroectodermal Tumor of the Central Nervous System   Fri Dec 12, 2014 10:43 pm
Alex19 0 anaplastic hemangiopericytoma, WHO grade III   Wed Jun 25, 2014 4:07 pm