Brain, Spinal Cord, & CNS Tumors - Rare Adult & Pediatric

brain stem glioma, ependymoblastoma, hemangiopericytoma, germinoma, gliomatosis cerebri, lymphoma, meningioma, meningeal melanocytoma, meningeal sarcoma, oligodendroglioma, pineoblastoma This is an open group, members can apply to join.

Group members      
meezergirl 3 hemangioparicytoma
Hawaii; native Texan
Sun Jan 29, 2012 12:57 am
eldmaw 0 primary central nervous system lymphoma ,NHL, in dura falx
Memphis, TN
Sun Jan 03, 2010 5:57 pm
pfuller70517 1 gliomatosis cerebri   Tue Nov 17, 2009 11:38 am
bpp30m 0 gliomatosis cerebri   Sun May 06, 2012 9:46 pm
cafagan 0 Choroid Plexus Papiloma and then Carcinoma   Fri Nov 02, 2012 8:31 am
Thess3_13 1 Gliomatosis Cerebri   Fri May 10, 2013 3:32 pm
1robert2 0 Gliomatosis Cerebri   Sat May 31, 2014 4:09 pm
shmowser 0 meninges haemangeopericytoma   Tue Dec 09, 2014 7:07 pm
nitzans 0 Hemangiopericytoma   Mon Jul 11, 2016 2:51 pm
Active MemberJMMM 22 Gliomatosis Cerebri   Tue Mar 07, 2006 11:24 am
Morgaine84 7 Adenoid cystic carcinoma of the breast   Wed Sep 02, 2009 7:53 am
DeNeece1 2 spinal cord pilomyxoid astrocytoma   Mon Sep 13, 2010 9:59 pm
nealemarie 0 gliomatosis cerebri   Sun Dec 04, 2011 11:53 pm
rubend 0 Desmoplastic Infantile Ganglioglioma   Mon Jun 25, 2012 9:18 am
susanna 0 Myofibroma or Desmoplastic Infantile Ganglioglioma   Tue Feb 12, 2013 3:29 am
Lynette 1 Glioblastoma   Mon Oct 28, 2013 10:26 pm
Alex19 0 anaplastic hemangiopericytoma, WHO grade III   Wed Jun 25, 2014 4:07 pm
redhatjudy 0 Merkel Cell Cancer   Tue Aug 18, 2015 12:47 pm
Pollie 0 Glioblastoma cerebri   Sat Dec 03, 2016 6:28 am
Ellys1607 0 Choroid plexus carcinoma   Tue Apr 11, 2017 3:45 pm
michaelrtracey 1 Desmoplastic Infantile Ganglioglioma   Tue Aug 31, 2010 7:16 am
jbn8 1 Glial-Neuronal type tumors   Sun Jan 23, 2011 8:52 am
Clementine S. 0 Giant Cell Tumor of Sacrum   Fri Mar 09, 2012 6:09 pm
Dedicated Supporternora.cannon 334 basiloid squamous cell Stage 2
Portland TN
Thu Apr 19, 2012 6:56 pm
mcuijten 1 Desmoplastic Infantile Ganglioglioma   Mon Apr 22, 2013 2:55 am
frieda4 0 Desmoplastic Infantile Ganglioglioma   Sat Jan 25, 2014 4:21 pm
dartbit 2 small-cell carcinoma
Lawrence, Kansas
Sun Oct 05, 2014 6:59 am
christothor 0 hemangiopericytoma   Tue Feb 09, 2016 12:58 am
J'dens mom 0 desmoplastic infantile ganglioma   Sat Nov 26, 2011 11:41 pm
Dutch14 0 Germ Cell Brain Tumour
North Coast Queensland Australia
Mon Feb 20, 2012 9:20 pm
madcityhkydad 1 Hemangiopericytoma
Monona, Wisconsin
Mon Sep 21, 2009 10:15 am
themasterofall 0 Oligodendroglioma   Fri Nov 11, 2011 10:27 am
paulinec22 1 Gliomatsis Cerebri   Thu May 10, 2012 10:12 am
ctaf 0 paragangloma   Tue Nov 06, 2012 3:01 pm
T'smom 0 gliomatosis cerebri   Mon Apr 27, 2015 4:20 pm
roseandtony 0 gliomatosis cerebri   Thu May 29, 2014 4:47 pm
Kelconlain 2 Supratentorial Primitive Neuroectodermal Tumor of the Central Nervous System   Fri Dec 12, 2014 10:43 pm
MysticMimi 0 Nuerfibromatosis 2, meningiomas, acoustic nueroma   Thu Jul 21, 2016 8:55 pm
nancyquam 1 Primary intraocular lymphoma   Fri Nov 16, 2007 6:36 am
Craig Gilligan 1 Pineal Germ Cell Teratoma   Tue Feb 10, 2009 1:43 pm
deggie 1 hemangiopericytoma   Wed Jan 18, 2012 2:27 am
SuzyQ 2 hemangiopericytoma
Toronto, Ont. Can.
Tue Jan 31, 2012 11:44 am
Cindyb 0 Medulloblastoma   Tue Jul 31, 2012 10:04 am
Shspiegel 0 Multiple meningioma   Thu Feb 28, 2013 3:19 pm
dward555 3 Desmoplastic Infantile Ganglioglioma   Sat Nov 02, 2013 8:12 am
Graham 1 haemangiopericytoma   Thu Sep 04, 2014 4:26 am
Drecazz 1 Giant Cell Carcinoma of the Spine   Sat Nov 07, 2015 10:07 am
Bugaroo 0 Hemangiopericytoma   Sat Jan 14, 2017 11:10 pm
Iceberg 1 desmoplastic infantile ganglioglioma
Australia
Sat Apr 15, 2017 1:03 am