Brain, Spinal Cord, & CNS Tumors - Rare Adult & Pediatric

brain stem glioma, ependymoblastoma, hemangiopericytoma, germinoma, gliomatosis cerebri, lymphoma, meningioma, meningeal melanocytoma, meningeal sarcoma, oligodendroglioma, pineoblastoma This is an open group, members can apply to join.

Group members      
Clementine S. 0 Giant Cell Tumor of Sacrum   Fri Mar 09, 2012 6:09 pm
Ellys1607 0 Choroid plexus carcinoma   Tue Apr 11, 2017 3:45 pm
GracieJane 0 Primary Central Nervous System Lymphoma   Wed May 01, 2013 3:40 am
TilleryIsLoved 0 Desmoplastic Infantile Ganglioglioma   Thu Oct 09, 2014 6:24 pm
bpp30m 0 gliomatosis cerebri   Sun May 06, 2012 9:46 pm
shmowser 0 meninges haemangeopericytoma   Tue Dec 09, 2014 7:07 pm
J'dens mom 0 desmoplastic infantile ganglioma   Sat Nov 26, 2011 11:41 pm
T'smom 0 gliomatosis cerebri   Mon Apr 27, 2015 4:20 pm
lnichol 0 glioneulonal-tumor with neuropil-like islands   Sun May 03, 2015 4:38 am
rubend 0 Desmoplastic Infantile Ganglioglioma   Mon Jun 25, 2012 9:18 am
redhatjudy 0 Merkel Cell Cancer   Tue Aug 18, 2015 12:47 pm
Cindyb 0 Medulloblastoma   Tue Jul 31, 2012 10:04 am
Pretzels 0 astroblastoma/L2-spinal cord   Tue Jul 31, 2012 11:25 pm
Morty 0 hemangiopericytoma   Sat Dec 07, 2013 9:34 am
MauGav 0 meningeal hemangiopericytoma   Sun Jan 03, 2016 4:10 am
frieda4 0 Desmoplastic Infantile Ganglioglioma   Sat Jan 25, 2014 4:21 pm
christothor 0 hemangiopericytoma   Tue Feb 09, 2016 12:58 am
ali&sam 0 Metastatic Choroid Plexus Carcinoma   Wed Oct 31, 2012 4:40 pm
VickyPrecious1234 0 Hemangiopericytoma   Wed Apr 23, 2014 2:25 am
0208paula 0 Hemangiopericytoma   Mon Feb 29, 2016 4:56 pm
eldmaw 0 primary central nervous system lymphoma ,NHL, in dura falx
Memphis, TN
Sun Jan 03, 2010 5:57 pm
lisazavodsky 0 Desmoplastic Infantile Ganglioglioma Thu Dec 22, 2011 7:52 pm
cafagan 0 Choroid Plexus Papiloma and then Carcinoma   Fri Nov 02, 2012 8:31 am
1robert2 0 Gliomatosis Cerebri   Sat May 31, 2014 4:09 pm
nitzans 0 Hemangiopericytoma   Mon Jul 11, 2016 2:51 pm
Dutch14 0 Germ Cell Brain Tumour
North Coast Queensland Australia
Mon Feb 20, 2012 9:20 pm
themasterofall 0 Oligodendroglioma   Fri Nov 11, 2011 10:27 am
ctaf 0 paragangloma   Tue Nov 06, 2012 3:01 pm
roseandtony 0 gliomatosis cerebri   Thu May 29, 2014 4:47 pm
MysticMimi 0 Nuerfibromatosis 2, meningiomas, acoustic nueroma   Thu Jul 21, 2016 8:55 pm
cretana 0 Hemangiopericytoma   Mon Nov 21, 2011 2:27 pm
jamer1971 0 juvenille pilocytic astrocytoma in the spinal cord   Fri Dec 07, 2012 8:02 pm
mecken 0 Hemangiopericytoma of the Brain   Sun Oct 16, 2016 10:50 pm
nealemarie 0 gliomatosis cerebri   Sun Dec 04, 2011 11:53 pm
susanna 0 Myofibroma or Desmoplastic Infantile Ganglioglioma   Tue Feb 12, 2013 3:29 am
Alex19 0 anaplastic hemangiopericytoma, WHO grade III   Wed Jun 25, 2014 4:07 pm
Pollie 0 Glioblastoma cerebri   Sat Dec 03, 2016 6:28 am
Shspiegel 0 Multiple meningioma   Thu Feb 28, 2013 3:19 pm
Bugaroo 0 Hemangiopericytoma   Sat Jan 14, 2017 11:10 pm
ampsmom 0 Pilocytic Astrocytoma with Pilomyoid features   Sun Dec 18, 2011 7:04 pm
craniums_up 0 Germ Cell Tumor/Yolk Sac/Teratoma   Sat Apr 13, 2013 7:33 pm
skoorb 0 Hemangiopericytoma   Wed Mar 22, 2017 7:37 am
michaelrtracey 1 Desmoplastic Infantile Ganglioglioma   Tue Aug 31, 2010 7:16 am
mcuijten 1 Desmoplastic Infantile Ganglioglioma   Mon Apr 22, 2013 2:55 am
chenucat 1 gliomatosis cerebri   Mon Sep 21, 2009 1:37 am
MissAlynn 1 Desmoplastic Infantile Ganglioglioma   Sun Apr 22, 2012 6:24 pm
Iceberg 1 desmoplastic infantile ganglioglioma
Australia
Sat Apr 15, 2017 1:03 am
pfuller70517 1 gliomatosis cerebri   Tue Nov 17, 2009 11:38 am
Thess3_13 1 Gliomatosis Cerebri   Fri May 10, 2013 3:32 pm