Brain, Spinal Cord, & CNS Tumors - Rare Adult & Pediatric

brain stem glioma, ependymoblastoma, hemangiopericytoma, germinoma, gliomatosis cerebri, lymphoma, meningioma, meningeal melanocytoma, meningeal sarcoma, oligodendroglioma, pineoblastoma This is an open group, members can apply to join.

Group members      
Active MemberJMMM 22 Gliomatosis Cerebri   Tue Mar 07, 2006 11:24 am
BlueTruly 2 gliomatosis cerebri/Oligodendroglioma
NOVA
Thu Apr 13, 2006 5:36 pm
Active Membergdpawel 36 Ovarian primary, metastatic to lung, brain mets, then Leptomeningeal Carcinomatous Tue Jul 10, 2007 11:18 pm
Pat 4 hemangiopericytoma   Thu Aug 02, 2007 8:58 pm
nancyquam 1 Primary intraocular lymphoma   Fri Nov 16, 2007 6:36 am
ChristinaMChiavetta 2 Gliomatosis Cerebri   Tue Jan 06, 2009 2:12 pm
Craig Gilligan 1 Pineal Germ Cell Teratoma   Tue Feb 10, 2009 1:43 pm
Morgaine84 7 Adenoid cystic carcinoma of the breast   Wed Sep 02, 2009 7:53 am
ajosef 1 PNET Medulloblastoma
Philadelphia
Fri Sep 04, 2009 6:43 am
chenucat 1 gliomatosis cerebri   Mon Sep 21, 2009 1:37 am
madcityhkydad 1 Hemangiopericytoma
Monona, Wisconsin
Mon Sep 21, 2009 10:15 am
pfuller70517 1 gliomatosis cerebri   Tue Nov 17, 2009 11:38 am
eldmaw 0 primary central nervous system lymphoma ,NHL, in dura falx
Memphis, TN
Sun Jan 03, 2010 5:57 pm
nathans.family 2 desmoplastic infantile ganglioglioma   Mon Aug 09, 2010 7:40 am
michaelrtracey 1 Desmoplastic Infantile Ganglioglioma   Tue Aug 31, 2010 7:16 am
Treeby 1 Carotid Body Paraganglioma   Thu Sep 09, 2010 10:04 pm
DeNeece1 2 spinal cord pilomyxoid astrocytoma   Mon Sep 13, 2010 9:59 pm
jbn8 1 Glial-Neuronal type tumors   Sun Jan 23, 2011 8:52 am
Bono 1 PARAGANGLIOMA   Sun Mar 20, 2011 4:37 pm
Sarah wife of Tom 1 papillary renal cell carcinoma! Brain tumor   Sun Oct 09, 2011 10:34 am
themasterofall 0 Oligodendroglioma   Fri Nov 11, 2011 10:27 am
cretana 0 Hemangiopericytoma   Mon Nov 21, 2011 2:27 pm
J'dens mom 0 desmoplastic infantile ganglioma   Sat Nov 26, 2011 11:41 pm
nealemarie 0 gliomatosis cerebri   Sun Dec 04, 2011 11:53 pm
ampsmom 0 Pilocytic Astrocytoma with Pilomyoid features   Sun Dec 18, 2011 7:04 pm
lisazavodsky 0 Desmoplastic Infantile Ganglioglioma Thu Dec 22, 2011 7:52 pm
deggie 1 hemangiopericytoma   Wed Jan 18, 2012 2:27 am
meezergirl 3 hemangioparicytoma
Hawaii; native Texan
Sun Jan 29, 2012 12:57 am
SuzyQ 2 hemangiopericytoma
Toronto, Ont. Can.
Tue Jan 31, 2012 11:44 am
Dutch14 0 Germ Cell Brain Tumour
North Coast Queensland Australia
Mon Feb 20, 2012 9:20 pm
Clementine S. 0 Giant Cell Tumor of Sacrum   Fri Mar 09, 2012 6:09 pm
Dedicated Supporternora.cannon 334 basiloid squamous cell Stage 2
Portland TN
Thu Apr 19, 2012 6:56 pm
MissAlynn 1 Desmoplastic Infantile Ganglioglioma   Sun Apr 22, 2012 6:24 pm
bpp30m 0 gliomatosis cerebri   Sun May 06, 2012 9:46 pm
paulinec22 1 Gliomatsis Cerebri   Thu May 10, 2012 10:12 am
rubend 0 Desmoplastic Infantile Ganglioglioma   Mon Jun 25, 2012 9:18 am
bt1943 1 hemangio pericytoma   Sun Jul 01, 2012 10:54 am
Cindyb 0 Medulloblastoma   Tue Jul 31, 2012 10:04 am
Pretzels 0 astroblastoma/L2-spinal cord   Tue Jul 31, 2012 11:25 pm
ali&sam 0 Metastatic Choroid Plexus Carcinoma   Wed Oct 31, 2012 4:40 pm
cafagan 0 Choroid Plexus Papiloma and then Carcinoma   Fri Nov 02, 2012 8:31 am
ctaf 0 paragangloma   Tue Nov 06, 2012 3:01 pm
jamer1971 0 juvenille pilocytic astrocytoma in the spinal cord   Fri Dec 07, 2012 8:02 pm
susanna 0 Myofibroma or Desmoplastic Infantile Ganglioglioma   Tue Feb 12, 2013 3:29 am
Shspiegel 0 Multiple meningioma   Thu Feb 28, 2013 3:19 pm
craniums_up 0 Germ Cell Tumor/Yolk Sac/Teratoma   Sat Apr 13, 2013 7:33 pm
mcuijten 1 Desmoplastic Infantile Ganglioglioma   Mon Apr 22, 2013 2:55 am
GracieJane 0 Primary Central Nervous System Lymphoma   Wed May 01, 2013 3:40 am
Thess3_13 1 Gliomatosis Cerebri   Fri May 10, 2013 3:32 pm

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