Brain, Spinal Cord, & CNS Tumors - Rare Adult & Pediatric

brain stem glioma, ependymoblastoma, hemangiopericytoma, germinoma, gliomatosis cerebri, lymphoma, meningioma, meningeal melanocytoma, meningeal sarcoma, oligodendroglioma, pineoblastoma This is an open group, members can apply to join.

Group members      
Dedicated Supporternora.cannon 334 basiloid squamous cell Stage 2
Portland TN
Thu Apr 19, 2012 6:56 pm
Active Membergdpawel 36 Ovarian primary, metastatic to lung, brain mets, then Leptomeningeal Carcinomatous Tue Jul 10, 2007 11:18 pm
Active MemberJMMM 22 Gliomatosis Cerebri   Tue Mar 07, 2006 11:24 am
Morgaine84 7 Adenoid cystic carcinoma of the breast   Wed Sep 02, 2009 7:53 am
Pat 4 hemangiopericytoma   Thu Aug 02, 2007 8:58 pm
meezergirl 3 hemangioparicytoma
Hawaii; native Texan
Sun Jan 29, 2012 12:57 am
dward555 3 Desmoplastic Infantile Ganglioglioma   Sat Nov 02, 2013 8:12 am
SCT63 3 stage 1 mucin secreting neoplasm   Mon Jun 09, 2014 3:52 pm
Kelconlain 2 Supratentorial Primitive Neuroectodermal Tumor of the Central Nervous System   Fri Dec 12, 2014 10:43 pm
bongo1975 2 Phylloid tumor   Tue Dec 30, 2014 7:46 am
DeNeece1 2 spinal cord pilomyxoid astrocytoma   Mon Sep 13, 2010 9:59 pm
BlueTruly 2 gliomatosis cerebri/Oligodendroglioma
NOVA
Thu Apr 13, 2006 5:36 pm
ChristinaMChiavetta 2 Gliomatosis Cerebri   Tue Jan 06, 2009 2:12 pm
SuzyQ 2 hemangiopericytoma
Toronto, Ont. Can.
Tue Jan 31, 2012 11:44 am
nathans.family 2 desmoplastic infantile ganglioglioma   Mon Aug 09, 2010 7:40 am
dartbit 2 small-cell carcinoma
Lawrence, Kansas
Sun Oct 05, 2014 6:59 am
chenucat 1 gliomatosis cerebri   Mon Sep 21, 2009 1:37 am
MissAlynn 1 Desmoplastic Infantile Ganglioglioma   Sun Apr 22, 2012 6:24 pm
Iceberg 1 desmoplastic infantile ganglioglioma
Australia
Sat Apr 15, 2017 1:03 am
pfuller70517 1 gliomatosis cerebri   Tue Nov 17, 2009 11:38 am
Thess3_13 1 Gliomatosis Cerebri   Fri May 10, 2013 3:32 pm
madcityhkydad 1 Hemangiopericytoma
Monona, Wisconsin
Mon Sep 21, 2009 10:15 am
paulinec22 1 Gliomatsis Cerebri   Thu May 10, 2012 10:12 am
Treeby 1 Carotid Body Paraganglioma   Thu Sep 09, 2010 10:04 pm
bt1943 1 hemangio pericytoma   Sun Jul 01, 2012 10:54 am
Lynette 1 Glioblastoma   Mon Oct 28, 2013 10:26 pm
nancyquam 1 Primary intraocular lymphoma   Fri Nov 16, 2007 6:36 am
deggie 1 hemangiopericytoma   Wed Jan 18, 2012 2:27 am
Drecazz 1 Giant Cell Carcinoma of the Spine   Sat Nov 07, 2015 10:07 am
Sarah wife of Tom 1 papillary renal cell carcinoma! Brain tumor   Sun Oct 09, 2011 10:34 am
jbn8 1 Glial-Neuronal type tumors   Sun Jan 23, 2011 8:52 am
Bono 1 PARAGANGLIOMA   Sun Mar 20, 2011 4:37 pm
ajosef 1 PNET Medulloblastoma
Philadelphia
Fri Sep 04, 2009 6:43 am
Craig Gilligan 1 Pineal Germ Cell Teratoma   Tue Feb 10, 2009 1:43 pm
Graham 1 haemangiopericytoma   Thu Sep 04, 2014 4:26 am
hemangiopericytoma 1 hemangiopericytoma   Fri Sep 05, 2014 5:58 pm
michaelrtracey 1 Desmoplastic Infantile Ganglioglioma   Tue Aug 31, 2010 7:16 am
mcuijten 1 Desmoplastic Infantile Ganglioglioma   Mon Apr 22, 2013 2:55 am
GracieJane 0 Primary Central Nervous System Lymphoma   Wed May 01, 2013 3:40 am
TilleryIsLoved 0 Desmoplastic Infantile Ganglioglioma   Thu Oct 09, 2014 6:24 pm
bpp30m 0 gliomatosis cerebri   Sun May 06, 2012 9:46 pm
shmowser 0 meninges haemangeopericytoma   Tue Dec 09, 2014 7:07 pm
J'dens mom 0 desmoplastic infantile ganglioma   Sat Nov 26, 2011 11:41 pm
T'smom 0 gliomatosis cerebri   Mon Apr 27, 2015 4:20 pm
lnichol 0 glioneulonal-tumor with neuropil-like islands   Sun May 03, 2015 4:38 am
rubend 0 Desmoplastic Infantile Ganglioglioma   Mon Jun 25, 2012 9:18 am
redhatjudy 0 Merkel Cell Cancer   Tue Aug 18, 2015 12:47 pm
Cindyb 0 Medulloblastoma   Tue Jul 31, 2012 10:04 am
Pretzels 0 astroblastoma/L2-spinal cord   Tue Jul 31, 2012 11:25 pm

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