Brain, Spinal Cord, & CNS Tumors - Rare Adult & Pediatric

brain stem glioma, ependymoblastoma, hemangiopericytoma, germinoma, gliomatosis cerebri, lymphoma, meningioma, meningeal melanocytoma, meningeal sarcoma, oligodendroglioma, pineoblastoma This is an open group, members can apply to join.

Group members      
Cindyb 0 Medulloblastoma   Tue Jul 31, 2012 10:04 am
Brianna 0 Chroid plexus carcinoma   Sun Dec 17, 2017 8:14 pm
Pretzels 0 astroblastoma/L2-spinal cord   Tue Jul 31, 2012 11:25 pm
Morty 0 hemangiopericytoma   Sat Dec 07, 2013 9:34 am
MauGav 0 meningeal hemangiopericytoma   Sun Jan 03, 2016 4:10 am
Paula j 0 Hemipercytoma grade 2   Tue Jan 09, 2018 4:36 pm
frieda4 0 Desmoplastic Infantile Ganglioglioma   Sat Jan 25, 2014 4:21 pm
christothor 0 hemangiopericytoma   Tue Feb 09, 2016 12:58 am
Louise 0 Choroid plexus carcinoma   Sat Jan 27, 2018 1:40 pm
ali&sam 0 Metastatic Choroid Plexus Carcinoma   Wed Oct 31, 2012 4:40 pm
VickyPrecious1234 0 Hemangiopericytoma   Wed Apr 23, 2014 2:25 am
0208paula 0 Hemangiopericytoma   Mon Feb 29, 2016 4:56 pm
jingyilin 0 Germ cell tumor in Pineal & Pituitary Gland   Tue Mar 13, 2018 7:28 pm
eldmaw 0 primary central nervous system lymphoma ,NHL, in dura falx
Memphis, TN
Sun Jan 03, 2010 5:57 pm
lisazavodsky 0 Desmoplastic Infantile Ganglioglioma Thu Dec 22, 2011 7:52 pm
cafagan 0 Choroid Plexus Papiloma and then Carcinoma   Fri Nov 02, 2012 8:31 am
1robert2 0 Gliomatosis Cerebri   Sat May 31, 2014 4:09 pm
nitzans 0 Hemangiopericytoma   Mon Jul 11, 2016 2:51 pm
heroaustin 0 ganglioglioma brain tumor Braf v600e mutation   Sat May 19, 2018 9:30 pm
Dutch14 0 Germ Cell Brain Tumour
North Coast Queensland Australia
Mon Feb 20, 2012 9:20 pm
themasterofall 0 Oligodendroglioma   Fri Nov 11, 2011 10:27 am
ctaf 0 paragangloma   Tue Nov 06, 2012 3:01 pm
roseandtony 0 gliomatosis cerebri   Thu May 29, 2014 4:47 pm
MysticMimi 0 Nuerfibromatosis 2, meningiomas, acoustic nueroma   Thu Jul 21, 2016 8:55 pm
Thunder99 0 Hemangiopericytoma   Sun Feb 10, 2019 3:55 am
cretana 0 Hemangiopericytoma   Mon Nov 21, 2011 2:27 pm
jamer1971 0 juvenille pilocytic astrocytoma in the spinal cord   Fri Dec 07, 2012 8:02 pm
mecken 0 Hemangiopericytoma of the Brain   Sun Oct 16, 2016 10:50 pm
AMC76 0 hemangiopericytoma   Wed Feb 27, 2019 8:02 am
nealemarie 0 gliomatosis cerebri   Sun Dec 04, 2011 11:53 pm
susanna 0 Myofibroma or Desmoplastic Infantile Ganglioglioma   Tue Feb 12, 2013 3:29 am
Alex19 0 anaplastic hemangiopericytoma, WHO grade III   Wed Jun 25, 2014 4:07 pm
Pollie 0 Glioblastoma cerebri   Sat Dec 03, 2016 6:28 am
TheLazyB 0 Hemangiopericytoma   Mon Jun 24, 2019 5:06 pm
Shspiegel 0 Multiple meningioma   Thu Feb 28, 2013 3:19 pm
Bugaroo 0 Hemangiopericytoma   Sat Jan 14, 2017 11:10 pm
Sammyq 0 Clinal chordoma   Sun Aug 04, 2019 7:46 am
ampsmom 0 Pilocytic Astrocytoma with Pilomyoid features   Sun Dec 18, 2011 7:04 pm
craniums_up 0 Germ Cell Tumor/Yolk Sac/Teratoma   Sat Apr 13, 2013 7:33 pm
skoorb 0 Hemangiopericytoma   Wed Mar 22, 2017 7:37 am
vilinikolovabt 0 astrocytoma   Mon Aug 05, 2019 10:28 am
Clementine S. 0 Giant Cell Tumor of Sacrum   Fri Mar 09, 2012 6:09 pm
Ellys1607 0 Choroid plexus carcinoma   Tue Apr 11, 2017 3:45 pm
cskinnju 0 Adenoid cystic carcinoma of skull base   Wed Sep 25, 2019 6:40 am
GracieJane 0 Primary Central Nervous System Lymphoma   Wed May 01, 2013 3:40 am
TilleryIsLoved 0 Desmoplastic Infantile Ganglioglioma   Thu Oct 09, 2014 6:24 pm
TEAMDP 0 nongerminomatous germ cell tumor   Wed Nov 18, 2020 11:26 am
bpp30m 0 gliomatosis cerebri   Sun May 06, 2012 9:46 pm
shmowser 0 meninges haemangeopericytoma   Tue Dec 09, 2014 7:07 pm

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