Brain, Spinal Cord, & CNS Tumors - Rare Adult & Pediatric

brain stem glioma, ependymoblastoma, hemangiopericytoma, germinoma, gliomatosis cerebri, lymphoma, meningioma, meningeal melanocytoma, meningeal sarcoma, oligodendroglioma, pineoblastoma This is an open group, members can apply to join.

Group members      
0208paula 0 Hemangiopericytoma   Mon Feb 29, 2016 4:56 pm
1robert2 0 Gliomatosis Cerebri   Sat May 31, 2014 4:09 pm
ajosef 1 PNET Medulloblastoma
Philadelphia
Fri Sep 04, 2009 6:43 am
Alex19 0 anaplastic hemangiopericytoma, WHO grade III   Wed Jun 25, 2014 4:07 pm
ali&sam 0 Metastatic Choroid Plexus Carcinoma   Wed Oct 31, 2012 4:40 pm
AMC76 0 hemangiopericytoma   Wed Feb 27, 2019 8:02 am
ampsmom 0 Pilocytic Astrocytoma with Pilomyoid features   Sun Dec 18, 2011 7:04 pm
BlueTruly 2 gliomatosis cerebri/Oligodendroglioma
NOVA
Thu Apr 13, 2006 5:36 pm
bmannfam 0 Incosistent; Pathology favoring Pleomorphic Xanthoastrocytoma   Tue Jan 10, 2023 9:59 am
bongo1975 2 Phylloid tumor   Tue Dec 30, 2014 7:46 am
Bono 1 PARAGANGLIOMA   Sun Mar 20, 2011 4:37 pm
bpp30m 0 gliomatosis cerebri   Sun May 06, 2012 9:46 pm
Brianna 0 Chroid plexus carcinoma   Sun Dec 17, 2017 8:14 pm
bt1943 1 hemangio pericytoma   Sun Jul 01, 2012 10:54 am
Bugaroo 0 Hemangiopericytoma   Sat Jan 14, 2017 11:10 pm
cafagan 0 Choroid Plexus Papiloma and then Carcinoma   Fri Nov 02, 2012 8:31 am
chenucat 1 gliomatosis cerebri   Mon Sep 21, 2009 1:37 am
ChristinaMChiavetta 2 Gliomatosis Cerebri   Tue Jan 06, 2009 2:12 pm
christothor 0 hemangiopericytoma   Tue Feb 09, 2016 12:58 am
Cindyb 0 Medulloblastoma   Tue Jul 31, 2012 10:04 am
Clementine S. 0 Giant Cell Tumor of Sacrum   Fri Mar 09, 2012 6:09 pm
Corey Fight 0 Diffuse Intrinsic Pontine Glioma   Tue Jul 11, 2023 4:26 pm
Craig Gilligan 1 Pineal Germ Cell Teratoma   Tue Feb 10, 2009 1:43 pm
craniums_up 0 Germ Cell Tumor/Yolk Sac/Teratoma   Sat Apr 13, 2013 7:33 pm
cretana 0 Hemangiopericytoma   Mon Nov 21, 2011 2:27 pm
cskinnju 0 Adenoid cystic carcinoma of skull base   Wed Sep 25, 2019 6:40 am
ctaf 0 paragangloma   Tue Nov 06, 2012 3:01 pm
dartbit 2 small-cell carcinoma
Lawrence, Kansas
Sun Oct 05, 2014 6:59 am
deggie 1 hemangiopericytoma   Wed Jan 18, 2012 2:27 am
DeNeece1 2 spinal cord pilomyxoid astrocytoma   Mon Sep 13, 2010 9:59 pm
Dfarquhar 0 Hemangiopericytoma   Sun Dec 17, 2017 5:36 pm
Drecazz 1 Giant Cell Carcinoma of the Spine   Sat Nov 07, 2015 10:07 am
Dutch14 0 Germ Cell Brain Tumour
North Coast Queensland Australia
Mon Feb 20, 2012 9:20 pm
dward555 3 Desmoplastic Infantile Ganglioglioma   Sat Nov 02, 2013 8:12 am
eldmaw 0 primary central nervous system lymphoma ,NHL, in dura falx
Memphis, TN
Sun Jan 03, 2010 5:57 pm
Ellys1607 0 Choroid plexus carcinoma   Tue Apr 11, 2017 3:45 pm
frieda4 0 Desmoplastic Infantile Ganglioglioma   Sat Jan 25, 2014 4:21 pm
Active Membergdpawel 36 Ovarian primary, metastatic to lung, brain mets, then Leptomeningeal Carcinomatous Tue Jul 10, 2007 11:18 pm
GracieJane 0 Primary Central Nervous System Lymphoma   Wed May 01, 2013 3:40 am
Graham 1 haemangiopericytoma   Thu Sep 04, 2014 4:26 am
hemangiopericytoma 1 hemangiopericytoma   Fri Sep 05, 2014 5:58 pm
heroaustin 0 ganglioglioma brain tumor Braf v600e mutation   Sat May 19, 2018 9:30 pm
Iceberg 1 desmoplastic infantile ganglioglioma
Australia
Sat Apr 15, 2017 1:03 am
jamer1971 0 juvenille pilocytic astrocytoma in the spinal cord   Fri Dec 07, 2012 8:02 pm
jbn8 1 Glial-Neuronal type tumors   Sun Jan 23, 2011 8:52 am
jingyilin 0 Germ cell tumor in Pineal & Pituitary Gland   Tue Mar 13, 2018 7:28 pm
Active MemberJMMM 22 Gliomatosis Cerebri   Tue Mar 07, 2006 11:24 am
joshone 0 Hemangiopericytoma Brain Tumour   Tue Oct 24, 2017 10:32 am
J'dens mom 0 desmoplastic infantile ganglioma   Sat Nov 26, 2011 11:41 pm

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