Welcome Rare Breast Tumor / Cancer Patients

This website was made specifically for you! As a rare breast cancer survivor, I know how hard it was for me to find information or support for my disease. As a rare tumor - cancer patient advocate since 1998, I have learned that it is difficult for all rare breast cancer and rare breast tumor patients. I hope that this website and project put an end to that!

Database Project

The Breast Tumor & Breast Cancer Database Project has been created to gather and store as much information, as possible, from existing patients and survivors.  It is my hope that this project will help us learn more about our own diseases.  I am also hoping that treating physicians will use the information in this database to learn more about our diseases. 

Support Groups & Project Discussion

I have created and maintain a number of support groups for rare breast tumor and rare breast cancer patients.  You can find them listed on the Support Group & Forums page.  There are two specifically designed to discuss this project, it's structure, and it's use.  Your input, suggestions, and comments will help us to complete the development of the Database.  Please join us and help to make this useful for all of us.

Rare Breast Tumors & Rare Breast Cancers

This is a partial list of some of the rare breast tumors and rare breast cancers that will be represented in our database:
acantholytic squamous cell carcinoma
acinic cell carcinoma of the breast
adenoid cystic carcinoma of the breast
adenomyoepithelioma
angiolipoma
angiomatosis
angiosarcoma of the breast
basal cell carcinoma of the nipple
carcinoid tumor of the breast
clear cell carcinoma of the breast
childhood breast cancer - all cell types found in children
cribriform carcinoma
fibromatosis of the breast
giant cell sarcoma of the breast
granulomatous mastitis Hodgkin's disease of the breast
inflammatory breast cancer
inflammatory pseudotumor
invasive micropapillary carcinoma (IMC)
leiomyosarcoma of the breast
liposarcoma of the breast
lymphoma of the breast
male breast cancers
mammary hamartoma
medullary carcinoma
melanoma of the breast
metaplastic breast cancer
mucinous (colloid) carcinoma of the breast
myofibroblastoma of the breast
Non-Hodgkin's lymphoma of the breast
oncocytic carcinoma of the breast
Paget's disease
papillary carcinoma
phyllodes tumor (phylloides, cystosarcoma phylloides) - malignant, borderline, and benign
pseudoangiomatous stromal hyperplasia
secretory carcinoma of the breast
spindle cell tumors and/or carcinoma of the breast
squamous cell carcinoma of the breast
tubular carcinoma
Others not yet listed

If you have a breast tumor or breast cancer that you have been told is rare, but it is not listed on this page, please use the Contact Us link above to tell us about it.