Click on any column label to sort the database in that order. I have not listed Anonymous information or Birth Date for confidentiality reasons. If you have a reason to see this birth date data or you would like to change or delete your entry, please Contact Us
| First Name | I | Last Name | DX Date | DX Age | Primary Site | Wrong DX | Surgical | Radiation | Chemotherapy | Alternative | Other Treatments | Surgeons | ENTs | Medical Onco | Radiation Onco | Other Professionals | Treatment CTR1 | Treatment CTR2 | Treatment CTR3 | Other Centers | Regrowth Date1 | Regrowth Date2 | Regrowth Comments | Mets Date1 | Mets Date2 | Other Metastasize | Mets Site1 | Mets Site2 | Other Mets Sites | Genetic Tests | Tumor Tests | Other Tests | Residence | Familial Factors | Environmental Factors | Other Illnesses | Deceased Date | Other Information | |
| Sharon | E | Lane |  |
1998-09-03 | 48 | breast | cysts, fibrocystic breast disease, benign tumor | 1998-09-03 lumpectomy, 1998-09-22 lumpectomy, 1998-10-16 partial mastectomy w/lymph node dissection, plastic reconstructive surgery in 1999. | 37 radiation treatments starting on 1998-11-23 @ 900 cGy dose, increased to 1800 cGy after several initial treatments. | Declined suggested chemotherapy. | Supplements and herbs when possible, healthy diet changes, professional counseling to get me through the initial stages, and support group activity to current date. | none | Andrus, excisional surgeries, Strong Memorial Hosp. Rochester NY; Kim Demore, plastic surgeon, Canandaigua NY | none | Steve Ignaczak, Clifton Springs Hosp. NY | Brian Mudd, Clifton Springs Hosp. NY | Wende Logan Young, Breast Specialist, Rochester NY | Strong Memorial Hospital, Rochester NY | Clifton Springs Hospital, Clifton Springs NY | none | none | 0000-00-00 | 0000-00-00 | none | 0000-00-00 | 0000-00-00 | none | none | none | none | none | CERB-B2 negative, P53 stron in less than 5%, weak up to 10%, estrogen and progesterone negative, all tumor section were firm in texture | none | Upstate NY & Southern AZ | Two uncles with other Rare Cancers | Smoked for 37 years, drank for 23 years, worked for pvc and cpvc manufacturing company, type A personality. | Severe osteoarthritis from misdiagnosed broken cervical spine disks, osteoporosis, bradycardia, MVP, transient blood pressure problems, GERD, cholitis | 0000-00-00 | I am a rare cancer advocate. Contact me if you want help. Put 'adenoid cystic' in the subject line. |
| William | N | Friedrich | |
1988-11-16 | 37 | right parotid | chronic otitis media | 11-1988 | 43 ion beam radiation treatments beginning in December, 1988 and ending in February, 1989 | Gleevec, 400 mg, started on 2002-11-08 | Kerry Olsen, Mitch Marion, and Jan Kasperbauer | Kerry Olsen, Colin Driscoll | Edward Creagan | Mayo Clinic | 0000-00-00 | 0000-00-00 | 1993-04-18 | 0000-00-00 | lungs | c-kit (moderate expression) | Minnesota | none | I was told by Dr. Marion that my tumor had been growing for at least 8 years. My wife and I lost our second child roughly 9 years before my diagnosis. I think that may have set the stage for a compromised immune system that allowed the cancer to get a foothold. | none | 0000-00-00 | ||||||||||||||
| Deborah | D | Erwin | 1979-07-05 | 30 | Subglotic trachea | Difficulty breathing for 18 months. Part of the time they thought it was due to pregnacy. | Total laryngectomy, 07-1979 | 6000 Gy summer-fall 1979 | Maurice Sherman | Maurice Sherman | Camp Pendleton Navy Medical Center | Long Beach Memorial, radiation of neck | Mass General Hospial | Rhode Isand Hospital for radiation of sacrum | 1998-07-01 | 0000-00-00 | 1998-07-01 | 2001-07-00 | 2002-08-15 | Trachea and right lung, all three lobes.Treatment was a right pneumonectomy | Left lung; watched until tumors began to grow, then entered clinical trial of 300 mg. of Gleevec in combo with Adriamycin. Trial was discontinued and I continued on Gleevec alone. | Sacrum; treatment was radiation and am currently on 500 mg. of Gleevec | Don't know what all they did | " | Rhode Island now, but we are a Navy family and have lived all over | Many many of my relatives have had cancer, all forms | My parents grew up in Gary, IN. Air quality was an oxymoron. | Asthma. Bilateral breast cancer, two different, non-ACC pathologies | 0000-00-00 | ||||||||||
| Raul | Dela Torre | |
1992-08-10 | 27 | Roof of mouth | Removed Palato - Ago/1992 - Lung metastasis May/2000 | Face radiation - ouc/1992 and spine sept and dez 2002 | Dr. Luis Goes - Brazil and Dr. Yong Florida USA | Dr. Kalman - FLorida - USA | Cerpo - Sao Paulo - Brazil | 0000-00-00 | 0000-00-00 | 0000-00-00 | 2002-08-19 | Lung | Spine | Outside Head | Margate, Florida | 0000-00-00 | ||||||||||||||||||||
| Yvonne | L | DeLeeuw | |
1988-11-11 | 37 | Hard & Soft Palate & Nasal Cav | Oral Resection/Biopsy 1988; Full Right Maxillectomy 1988;Lung metastases surgeries 1990,1994, 1999, 2000 | daily for six weeks, 1989 | None | None | Helmuth Geopfert MD Anderson cancer center 1988; Micaeh Johnson, Univ of Colo 1990; Dr. Gaskill, MedCenterOne (ND) 1999; Michael brown, St Alexius Med Center (ND) 2000 | Helmuth Goepfert; Randall Breau | Pedro Mendoza, Pulmonary Specialist | Methodist Hosp, Dallas--good hosp but no ACC experience | MD Anderson Cancer center, Houston ----great!!!!! | Univ of Colorado ----good Dr., dirty Hospital | MedCenterOne, Bismarck ND---bad experience, missed half the tumor; St. Alexius Hospital, Bismarck ND ---good | 0000-00-00 | 0000-00-00 | no regrowth in primary site | 1990-06-01 | 1999-10-01 | suspected mets 1994 resulted in surgery but nothing found | lungs | lungs | Arkansas | none | ex-smoker (15 yrs@1 pack per day) | none | 0000-00-00 | |||||||||
| Leah | B | 2002-03-20 | 22 | right parotid | parotitis | parotidectomy 2003-03-04 | 2003-04-15 to 2003-05-27, 30 sessions | Dr. Hoshowsky, Dr. Mckinnon | Dr. Hoshowsky | Dr. Mckinnon | Tom Baker Cancer Centre | 0000-00-00 | 0000-00-00 | 0000-00-00 | 0000-00-00 | Calgary, Canada | 0000-00-00 | ||||||||||||||||||||||
| Bob | Bosley | |
1998-10-15 | 67 | uvula | excised uvula. 12-04-1998 | none | none | hyperthermia @ misiltoe treatments | nutritional | Dr. Klotch | Dr. Klotch | Dr. Klotch | w. Baker, M.T., Clinical Nutritionist | Moffit Cancer Center, USF, Tampa, Fl. | Klinik-St-Georg, Bad Aibling, Germany | 0000-00-00 | 0000-00-00 | 0000-00-00 | 0000-00-00 | Florida | Mastoid, Rt. ear, Kidney Stones, Hemmoroids, Gallbladder removed | 0000-00-00 | ||||||||||||||||
| Jackie | Rossier | |
2002-03-06 | 55 | lacrimal gland | chronic sinus infections | 2002-03-06 | Mixed proton/X-ray 2002-07-15 thru 2002-08-21 | Dr. Peter Rubin, MEEI | Mass. Eye & Ear Clinic | Mass. General Hospital, Northeast Proton Therapy Center | Mass General Hospital, Cox Building | 0000-00-00 | 0000-00-00 | 0000-00-00 | 0000-00-00 | New Hampshire | Irritable Bowel Syndrome | 0000-00-00 | ||||||||||||||||||||
| Paul | R | Hetzer | |
2003-03-10 | 36 | left main bronchi | pneumonectomy, left; 2003-04-01 | Farid Gharagozloo, MD | Robert Herscowitz, MD | George Washington University Hospital | 0000-00-00 | 0000-00-00 | 0000-00-00 | 0000-00-00 | Mid-Atlantic, US | Pneumonia, Asthma | 0000-00-00 | ||||||||||||||||||||||
| Stephen | B | 2000-04-22 | 46 | lower back | wode excision surgically removed | Robert Piorkowski | Hartford Hospital | 0000-00-00 | 0000-00-00 | 0000-00-00 | 0000-00-00 | Hartford, CT | 0000-00-00 | ||||||||||||||||||||||||||
| Kevin | H | Tantlinger | |
2000-06-21 | 41 | Right perotid | rt.perotid surgery | 6 weeks | Dr. Calcattera / UCLA | UCLA Medical Center | 0000-00-00 | 0000-00-00 | 0000-00-00 | 0000-00-00 | 0000-00-00 | ||||||||||||||||||||||||
| Leon | Jinich | |
1982-10-28 | 34 | salivary gland | 1982-10-31 | removal | 1983-01 | Steve Shaffer | Sam Truelson | UT Southwestern | St Paul | 0000-00-00 | 0000-00-00 | 0000-00-00 | 0000-00-00 | Plano, TX | Exposed to DDT | none | 0000-00-00 | Brain Tumor 2000-03-04 | ||||||||||||||||||
| Hollis | K | 2001-11-12 | 46 | Trachea | Asthma | Resection - 2001-11-12 | none | none | none | none | Dr. Dale Mueller | Dr. Debra Alt | Dr. James Knost | Methodist Medical Center Peoria, IL | 0000-00-00 | 0000-00-00 | 2003-01-13 | 2003-05-12 | Right lung | Bones - Spine - ribs - pelvis | Peoria, IL | none | 0000-00-00 | ||||||||||||||||
| Patricia | N | Walton | |
0000-00-00 | 51 | Floor of mouth | Lump removed 3/98; neck disection to check for more cancer 5/98; Possible scar tissue removed 3/02 but found ACC again; 5/31/02 ACC removed from floor of mouth along with 3 teeth & partial jawbone. | 30 treatments ending 9/6/03. | None | None | Hospitalized for infection after 5/31/02 surgery, treated with strong antibiotics. | Dr. John Babyak & Dr. David Stepnick | Same | Fifth Ave Otolaryngology | University Otolaryngology Head & Neck Surgery/Univ. Hospital of Cleveland | 0000-00-00 | 0000-00-00 | 0000-00-00 | 0000-00-00 | none | none | PET Scan 3/31/03 | Northeast Ohio | Aunt/Breast Cancer | Osteoarthritis/GERD | 0000-00-00 | |||||||||||||
| Morley | J | Dickie | |
2003-02-01 | 18 | parotid gland | removal of parotid gland | 30 radiation treatments | 0000-00-00 | 0000-00-00 | 0000-00-00 | 0000-00-00 | 0000-00-00 |
Copyright © Sharon Lane
Last modified: July 2, 2005
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